Treatment

The ARSACS Foundation is now
working with pharmaceutical companies
to develop a treatment for ARSACS

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Several research projects
are currently funded
by the Foundation
in Canada and abroad

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The Ataxia gene can be
passed through many generations
without manifesting any symptoms

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Corporations make a difference

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We need your support
to continue our research
because research heals

Donate now

"Dîner des Producteurs"

annual fundraiser for ARSCAS research

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Latest News

Meeting

April 18, 2016 - Save the date: Thursday December 1st 2016

The annual fundraising diner for the Foundation of Ataxia Charlevoix- Saguenay will be on Thurday December 1st 2016. More details to come.

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Meeting

April 15, 2016 - Reminder : May 20th dedline to apply for a research grant

The Foundation continues to fund ARSACS research projects in 2016, a maximum of $100,000 per year with a possiblilty of renewal for a second year. If you are interested in the subject, please send your completed application form now. The deadline is May 20, 2016.

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Meeting

April 7, 2016 - Next Board meeting on June 15th

The next meeting of the Board of directors of the Ataxia Charlevoix-Saguenay Foundation will be held on June 15th ,2016 in Montreal.

Meeting

April 6, 2016 - "Cakes and homemade pastries" event on May 26 and 27

"Cakes and homemade pastries" fundraising event for the Foundation on May 26 and 27, at the Royal Bank of Canada(Duvernay Branch) 3100 Concorde Blvd., Laval. For information or if you are interested in participating or contributing, pleae contact Karo Gagné at karo.gagne at rbc.com

Meeting

March, 2016 - Dr. Brais and Dr.Gagnon - on of the 9 JTC 2015 projects selected

"Gene discovery to treat degenerative brain disorders" , a research projetc under the leadership of Dr Bernard Brais and Dr Cynthia Gagnon, is one of the 9 JTC 2015 research projects selected by the CIHR to support cutting-edge rare disease research on an international basis.

Meeting

March 16, 2016 - Drug-screening molecules possible

The Foundation of Ataxia Charlevoix-Saguenay and its team of researchers are optimistic that a drug-screening molecules will be possible in the coming months in Montreal. Details to come.

Meeting

March 08, 2016 - Research in real time

The Ataxia Charlevoix-Saguenay Foundation endorses and welcomes Rachel Harding's (University of Toronto researcher) innovative approach in opening her research notebook to the research community in real time. Like Ms. Harding who is currently working on a large protein involved in a rare disease, the Foundation believes that open real time can open new channels of communication and collaboration. Providing access to data and research tools can only help accelerate drug discovery. For more information, see Press Release and Toronto Star

Meeting

March 05, 2016 - "Sacsin Chaperone Activity" project progress

"Sacsin Chaperone Activity" project progress. Dr Jason Young's project funded by the Foundation is to examine the ARSACS mutations in the J-HEPN fragment of Sacsin, to engineer Hsc70 to potentially identify sacsin-directed substratesand to address whether Sacsin promotes degradation of neurofilament heavy subunit (NFH).

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