Latest News

5th ARSACS Symposium in 2018

The 5 th ARSACS symposium will be held in Montreal in November 2018. Details to come.

Come and dance Zumba with us !

Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, 4 students at the Cegep and the University of Quebec in Trois-Rivières, organize a zumbathon on October 26, 2017 at the UQTR. All funds raised will be donated to the Charlevoix-Saguenay Ataxia Foundation. For more information contact Catherine (


"Diner des Producteurs " coming soon

Invitation to the 2017  annual “Diner des Producteurs” with  the honorary president Mr. Jean-Guy Desjardins and with the 3 stars Michelin invited chef Eric Ripert from Le Bernardin in New York. Reserve your table now .


Dr. Matthis Synofzik to present at the 2nd International Ataxia Research Conference.

Dr. Matthis Synofzik,  a researcher at the University of Tuebingen funded by the ARSACS Foundation, will present  his research results at the 2nd International  Ataxia Conference in Pisa. His research  deals with dyphrasia (language disorder in people with ARSACS). Summary.

2nd International Ataxia Research Conference on September 27-30, 2017


The 2nd International Ataxia Research Conference will be held on September 27-30, 2017 in Pisa, Italy. The focus of the meeting is a comprehensive scientific review of new research from disease definition to therapeutic treatments.More Details 

September 25th is the International Ataxia Awareness Day


It is key to spread awareness about Ataxia in order to help people with Ataxia and inspire actions toward a cure.

This year the theme is “Stumble Onto Ataxia”.  Ataxia can affect anyone, at any age. Symptom onset is unpredictable. Everybody should know about the disease to recognize early signs/symptoms.

Help us building that awareness in the general public.

Dr. Luc J. Hébert

Dr. Hébert 's final project report


See Dr. Hébert ‘s  final  project  report.  ( available in French only)  ” Caractérisation des déficiences, limitations d’activités et restrictions de participation ainsi que leur interrelations chez les personnes atteintes d’ataxie récessive spastique de Charlevoix-Saguenay (ARSCS) ” is one of the projects funded by the Foundation in 2016-2017.


12 researchers to share $1M to pursue ARSACS research


The Foundation is very pleased to announce that 12 researchers will share close to $1M in the  2017-2018 period. This will allow them to pursue their research on ARSACS and hopefully to develop a treatment.

See list of 10 projects selected.

A Spanish family visiting Dr Brais' research lab


A Spanish family from Madrid was in Montreal in July  visiting Dr.  Bernard Brais and his research laboratory. Their son  has being diagnosed with ARSACS.

Dr. Brais  is a key member of  the ARSACS research team.




The "375 Montreal Joke Booklet" – $1000 for ARSACS!



The great  initiative of the Baratta brothers, students at Selwyn House School, raised $ 1,000 for research on ARSACS  via the sale of the book “375 Mtl-joke booklet”.

Many  thanks to the young students for their  initiative and to all those who encouraged them.


Dr. Francesca Maltecca

Dr. Maltecca's latest research progress report

See research progress report  “Investigating the link between impaired mitochondrial trafficking and calcium dysregulation in Sacs-/- Purkinje neurons”.

Dr. Maltecca ‘s  research  is one of the project funded by the Foundation.


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