Mr.Jacques Bougie, former president and CEO of Alcan, has accepted to be the honorary president of the 2014 Dîner des Producteurs. The date of the event should be confirmed shortly.
Throughout the year, the Perce-Neige daycare sold various items made by the students, such as key chains, Christmas cards and plants. Thanks to the involvement of the parents who have strongly participated in the project, the daycare exceeded its initial goal and raised $ 2026. In addition, the family of Felix who is suffering from ARSACS raised $ 815 by selling Christmas logs. We thank the community of Pont-Rouge and the family of Felix who have responded to the call.Read More
As part of its ARSACS research funding program, the Foundation of Ataxia Charlevoix-Saguenay has decided that it will consider all grant applications related to research on ARSACS. At any time, researchers interested in pursuing this funding opportunity may contact the Foundation by email at email@example.com.
At the meeting of the Board held on 9 June in Montreal, there was discussion on the new cell model being developped and its potential use for screening large banks of therapeutic molecules.Read more
The Foundation is pleased to announce that it will fund the research of Dr. Paola Giunti (ULC Institute of Neurology and National Hospital for Neurology and Neurosurgery, London, UK) under its current research funding program. Her work entitled "Design and Validation of a Custom Amplicon Panel for the Diagnosis of Spastic ARSACS and other ataxias" should contribute to diagnose ARSACS more efficiently and at a lower cost.Read more
The Ataxia Charlevoix-Saguenay Foundation was founded in 2006 to finance scientific research on Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).Learn more
350 people attended the event and contributed $750,000 to research.Learn more
ARSACS is a debilating hereditary and progressive childhood neurological disorder.Learn more