The 5 th ARSACS symposium will be held in Montreal in November 2018. Details to come.
Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, 4 students at the Cegep and the University of Quebec in Trois-Rivières, organize a zumbathon on October 26, 2017 at the UQTR. All funds raised will be donated to the Charlevoix-Saguenay Ataxia Foundation. For more information contact Catherine (firstname.lastname@example.org).
Dr. Matthis Synofzik, a researcher at the University of Tuebingen funded by the ARSACS Foundation, will present his research results at the 2nd International Ataxia Conference in Pisa. His research deals with dyphrasia (language disorder in people with ARSACS). Summary.
The 2nd International Ataxia Research Conference will be held on September 27-30, 2017 in Pisa, Italy. The focus of the meeting is a comprehensive scientific review of new research from disease definition to therapeutic treatments.More Details
It is key to spread awareness about Ataxia in order to help people with Ataxia and inspire actions toward a cure.
This year the theme is “Stumble Onto Ataxia”. Ataxia can affect anyone, at any age. Symptom onset is unpredictable. Everybody should know about the disease to recognize early signs/symptoms.
Help us building that awareness in the general public.
See Dr. Hébert ‘s final project report. ( available in French only) ” Caractérisation des déficiences, limitations d’activités et restrictions de participation ainsi que leur interrelations chez les personnes atteintes d’ataxie récessive spastique de Charlevoix-Saguenay (ARSCS) ” is one of the projects funded by the Foundation in 2016-2017.
The Foundation is very pleased to announce that 12 researchers will share close to $1M in the 2017-2018 period. This will allow them to pursue their research on ARSACS and hopefully to develop a treatment.
See list of 10 projects selected.
A Spanish family from Madrid was in Montreal in July visiting Dr. Bernard Brais and his research laboratory. Their son has being diagnosed with ARSACS.
Dr. Brais is a key member of the ARSACS research team.
The great initiative of the Baratta brothers, students at Selwyn House School, raised $ 1,000 for research on ARSACS via the sale of the book “375 Mtl-joke booklet”.
Many thanks to the young students for their initiative and to all those who encouraged them.