Latest News


Success! Growth of cells from ARSACS patient skin

Dr. Paul Chapple’s lab has successfully grown cells from a small biopsy of ARSACS patient skin and has reprogrammed them to become stem cells which can turn into other cell types. The following step was to grow ARSACS neurons from such stem cells. This resulted in obtaining ARSACS patient neurons in a petri dish available for research; a useful tool for modelling the disease. Image 3 shows some of these neurons, and in particular their long axonal process. See  the following images:  Image 1: ARSACS fibroblast, Image 2: iPSC colonies, Image 3: ARSACS derived neurons, Image 4: ARSACS fibroblasts mitochondria.



Alliance between ARSACS Foundation and Ataxia UK

The Ataxia of Charlevoix-Saguenay Foundation and Ataxia UK are pleased to
announce a co-funding alliance to support and to advance medical research in the UK on ataxia
of Charlevoix-Saguenay. This alliance is clear evidence of openness and commitment towards ground-breaking research and future development in ataxias.
 Press release 



Care For Rare

Care4Rare Year 3 – progress report

Care4Rare is a research project to identify therapeutic leads for rare diseases such as ARSACS. The Foundation is financing the ARSACS portion under the leadership of Dr. Kym Boycott and Dr. Alex MacKenzie from the Children Hospital of Eastern Ontario.  Year 3 Progress Report




ARSACS case reported from South India

A group of researchers in South India under the leadership of Dr. M Suraj Menon
Department of Neurology, Government TD Medical College, Alappuzha
India have reported an ARSACS case from South India. See article.



Dr.Slaven Erceg

Publication by Dr. Erceg on hiPSC

Dr. Salven Erceg  from Spain has published an article  in the Neuroscientist on the human induced pluripotent stem cells (hiPSC). This  article  is an outcome of the research  financed by the ARSACS Foundation.



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Fourth International Symposium on ARSACS

The fourth international symposium on ARSACS will be held in Montreal on November 10th & 11th,2016.


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Dr. Mckinney and Dr. Watt's research progress report

“Physiological characterization of functional deficits and potential therapeutic targets in ARSACS mice.”-Progress report of Dr. McKinney and Dr. Watt’s research project funded by the Foundation.


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$1Million to 11 selected research projects for 2016-2017

11 research projects  will share  $1 million as part of the Foundation’s research program for 2016-2017.


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Impact of donations – article by McGill Neuro

McGill Neuro published an article on the impact of donations to support research using the example of the Ataxia Charlevoix-Saguenay Foundation  – Article ( French version only)



Reserve your table! Thursday December 1st 2016

The annual fundraising dinner for the Foundation of Ataxia Charlevoix- Saguenay will be on Thursday December 1st 2016. You can download a reservation form for tables here.

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Our Annual Fundraiser