“To my colleagues, friends and family,
I am asking you to raise money for a cause that is close to my heart, but also to make you aware of this disease, autosomal recessive spastic ataxia Charlevoix-Saguenay, which affects my nephew and my niece. The money raised will be donated to the Charlevoix-Saguenay Ataxia Foundation. It gives all people with the disease and their families hope and hope to find and develop treatment for this disease.
Thank you in advance for your generosity. For my two loves, Maxine Blackburn, 6 years old and Lennox Blackburn, 4 years old.
Aunt Sarah “
Joseph-Émile Cashman Kadri, research student working with Dr. Hébert on an ARSACS project, presented the results of his study at the students’ conference of the 2017 summer fellows of the Faculty of Medicine of Laval University.
According to Dr. Hébert, “The results of this feasibility study are very interesting since they demonstrate the possibility of acquiring EMG data on muscle activation profiles in people with ARSACS. The preliminary data are also very interesting because they go in the direction of our research hypotheses that the presence of abnormally high co-contractions in the antagonistic muscles in people with ARSACS could explain the mobility difficulties. It must now be demonstrated in a larger cohort of patients (current project funded by the Foundation) and try to better understand why these deficiencies are present in order to better treat them (next step)”.
See Dr. Hébert’s report ( available in French only). “Caractérisation des déficiences musculaires associées aux difficultés à la marche et aux transferts chez des patients atteints d’ARSACS: de la cellule à la fonction” is one of the projects funded by the Foundation.
$ 905 raised for ARSACS research thanks to the zumba dancers. The zumbathon, organized by Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, took place on October 26, 2017 at UQTR. Thank you to all the dancers for their participation and to the organizers of the event. Photos of the evening.
“Nothing stops François and Laurent, not even the Ataxia of Charlevoix-Saguenay. The two young brothers excel in sledge hockey which allows them to practice their favorite sport” Interview with Frédéric Lacroix – Couture, L’ express Mont-Royal, November 2017. (French version only).
On October 26th, the 11th edition of the “Diner des Producteurs ” was held under the honorary presidency of Mr. Jean-Guy Desjardins, Fiera Capital. A record net amount of $ 1.2M was raised. Thank you to all those who contributed to the success of this unique evening and whose donations support medical research.
The next meeting of the Board of Directors of the Foundation Ataxia Charlevoix- Saguenay will be held on Monday December 4,2017.
Marie-Claude Desormiers, suffering from ARSACS, gave an interview in October to Sonia Gobeil of the Charlevoix-Saguenay Ataxia Foundation. Interview with Marie-Claude, a courageous and determined person.
The 5 th ARSACS symposium will be held in Montreal in November 2018. Details to come.