Latest News

$905 raised at the Zumbathon!

$ 905 raised for ARSACS research thanks to the zumba dancers. The zumbathon, organized by Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, took place on October 26, 2017 at UQTR. Thank you to all the dancers for their participation and to the organizers of the event. Photos of the evening.


"Hockeyeurs sur luge … à toute vitesse"

“Nothing stops François and Laurent, not even the Ataxia of Charlevoix-Saguenay. The two young brothers excel in sledge hockey which allows them to practice their favorite sport” Interview with Frédéric Lacroix – Couture, L’ express Mont-Royal, November 2017. (French version only).

Dr. Bernard Brais

Dr. Brais named "Personality of the week"

Dr. Bernard Brais, a key member of the ARSACS research team since the beginning, has been named the “Personality of the week” by La Presse newspaper.
Interview by Marie-Claude Lortie from La Presse (in French only).

The "Diner des Producteurs " raised $1.2 M for ARSACS

On October 26th, the 11th edition of the “Diner des Producteurs ” was held under the honorary presidency of Mr. Jean-Guy Desjardins, Fiera Capital. A record net amount of $ 1.2M was raised. Thank you to all those who contributed to the success of this unique evening and whose donations support medical research.

Next Board Meeting on December 4th

The next meeting of the Board of Directors of the Foundation Ataxia Charlevoix- Saguenay will be held on Monday December 4,2017.

"GO FORTH AND DON'T LET ANYONE STOP US " advises Marie-Claude Desormiers

Marie-Claude Desormiers, suffering from ARSACS, gave an interview in October to Sonia Gobeil of the Charlevoix-Saguenay Ataxia Foundation. Interview with Marie-Claude, a courageous and determined person.

ARSACS research making progress

Research on ARSACS is making progress. 2017 is the first year where therapeutic breakthroughs for this disease are emerging.
Update report prepared by Dr. Bernard Brais.

5th ARSACS Symposium in 2018

The 5 th ARSACS symposium will be held in Montreal in November 2018. Details to come.

Dr. Matthis Synofzik to present at the 2nd International Ataxia Research Conference.

Dr. Matthis Synofzik,  a researcher at the University of Tuebingen funded by the ARSACS Foundation, will present  his research results at the 2nd International  Ataxia Conference in Pisa. His research  deals with dyphrasia (language disorder in people with ARSACS). Summary.

2nd International Ataxia Research Conference on September 27-30, 2017


The 2nd International Ataxia Research Conference will be held on September 27-30, 2017 in Pisa, Italy. The focus of the meeting is a comprehensive scientific review of new research from disease definition to therapeutic treatments.More Details 

Dre Gagnon to present at the International Ataxia Research Conference

Dre Cynthia Gagnon will be presenting at the International Ataxia Research conference . Summary of her presentation.

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