The Ataxia Charlevoix-Saguenay Foundation

Who We Are


Our Mission

 

 

The Ataxia Charlevoix-Saguenay Foundation was founded in 2006 to finance scientific research on Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).

More info

"Dîner des Producteurs"
Great success!

 

 

The "Dîner des Producteurs" is an annual major fundraising event held in Montreal. Last year the event raised over $700,000 for the ARSACS reseach.

More Info

What is ARSACS?

 

 

ARSACS is a debilating hereditary and progressive childhood neurological disorder. Ataxia affects the spinal cord and the peripheral nerves.

More info

What We Do

Raise Funds

The Ataxia Charlevoix-Saguenay Foundation is a charitable organisation supported entirely by private donations. Different events are organised during the year by families, friends and community groups to raise funds to support research on ARSACS..


Assemble a great team

Since its creation, the Foundation has been successful in assembling a great team at all levels of the organisation (board, advisors, researchers, contributors and partners). The researchers are well respected in their field and have an international reputation for excellence..

Spend on research

The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Several research projects on ARSACS are currently funded by the Foundation in Canada and abroad. Over 98% of the funds raised are allocated to research.


Discover

The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS.

Clinical trials

The first therapeutic tests on transgenic ARSACS mice conducted in the Spring 2013 were very positive. For a short study, the tests demonstrated some beneficial effect on the physical performance of the mice. Discussions are underway to determine the next step.