The 1oth edition of the “Dîner des Producteurs” held in Montreal on December 1,2016 raised the net sum of $780,000 for ARSACS research. Thank you to all participants, sponsors, volunteers and donors for this great success ! Read more
The Foundation Board of Directors will meet on Monday December 19,2016 in Montreal.
ARSACS researchers will be at the Institute for Research in Immunology and Cancer at the University of Montreal (IRIC) on December 13, 2016 to analyze in greater details the first results of the drug screening therapeutic molecules carried out over the last months . Stay tuned.
Several researchers from different countries participated in the 4th Symposium on ARSACS held on November 10 &11 at the Neuro in Montreal. This conference provided an opportunity for researchers to share their knowledge and to discuss the progress of their respective research. Read more
The Foundation is pleased to announce a co-funding collaboration with the University of Saskatchewan, recognizing the strong support from the Richardson Family Fund, to advance medical research on ataxia of Charlevoix-Saguenay. Press Release
Dr. Paul Chapple’s lab has successfully grown cells from a small biopsy of ARSACS patient skin and has reprogrammed them to become stem cells which can turn into other cell types. The following step was to grow ARSACS neurons from such stem cells. This resulted in obtaining ARSACS patient neurons in a petri dish available for research; a useful tool for …
The Ataxia of Charlevoix-Saguenay Foundation and Ataxia UK are pleased to announce a co-funding alliance to support and to advance medical research in the UK on ataxia of Charlevoix-Saguenay. This alliance is clear evidence of openness and commitment towards ground-breaking research and future development in ataxias. Press release
Care4Rare is a research project to identify therapeutic leads for rare diseases such as ARSACS. The Foundation is financing the ARSACS portion under the leadership of Dr. Kym Boycott and Dr. Alex MacKenzie from the Children Hospital of Eastern Ontario. Year 3 Progress Report
A group of researchers in South India under the leadership of Dr. M Suraj Menon Department of Neurology, Government TD Medical College, Alappuzha India have reported an ARSACS case from South India. See article.
Dr. Salven Erceg from Spain has published an article in the Neuroscientist on the human induced pluripotent stem cells (hiPSC). This article is an outcome of the research financed by the ARSACS Foundation. Read more