Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, 4 students at the Cegep and the University of Quebec in Trois-Rivières, organize a zumbathon on October 26, 2017 at the UQTR. All funds raised will be donated to the Charlevoix-Saguenay Ataxia Foundation. For more information contact Catherine (email@example.com).
It is key to spread awareness about Ataxia in order to help people with Ataxia and inspire actions toward a cure. This year the theme is “Stumble Onto Ataxia”. Ataxia can affect anyone, at any age. Symptom onset is unpredictable. Everybody should know about the disease to recognize early signs/symptoms. Help us building that awareness in the general public.
See Dr. Hébert ‘s final project report. ( available in French only) ” Caractérisation des déficiences, limitations d’activités et restrictions de participation ainsi que leur interrelations chez les personnes atteintes d’ataxie récessive spastique de Charlevoix-Saguenay (ARSCS) ” is one of the projects funded by the Foundation in 2016-2017.
The Foundation is very pleased to announce that 12 researchers will share close to $1M in the 2017-2018 period. This will allow them to pursue their research on ARSACS and hopefully to develop a treatment. See list of 10 projects selected.
A Spanish family from Madrid was in Montreal in July visiting Dr. Bernard Brais and his research laboratory. Their son has being diagnosed with ARSACS. Dr. Brais is a key member of the ARSACS research team.
. The great initiative of the Baratta brothers, students at Selwyn House School, raised $ 1,000 for research on ARSACS via the sale of the book “375 Mtl-joke booklet”. Many thanks to the young students for their initiative and to all those who encouraged them.
See research progress report “Investigating the link between impaired mitochondrial trafficking and calcium dysregulation in Sacs-/- Purkinje neurons”. Dr. Maltecca ‘s research is one of the project funded by the Foundation.
The Foundation has received 17 applications for research fellowship for the 2017-2018 year. The Foundation would like to thank all the applicants for their interest in ARSACS research. The Scientific Committee would evaluate each of the applications and a final decision concerning which research projetcs will obtain financing in 2017-2018 will be announced in July 2017.
Under Professor Paul Chapple’s leaership, the ARSACS research team has published in May 2017 a research paper in the Human Molecular Genetics journal looking at the cytoskeleton in cells cuktured from ARSACS patients. “We have identified a cytoskeletal phenotype in skin cells from ARSACS patients. This is important as it should be possible use this cellular phenotype as a readout …
On May 31st, 2 students at Selwyn House School will visit each elementary school class to tell a joke from their 375 Mtl-joke booklet. The booklet is to commemorate Montreal’s 375th anniversary and to raise funds for ARSACS. The minimum suggested contribution is $2. Get ready to roll on the floor laughing! To order the booklet, please contact Suzanne at …
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