$ 905 raised for ARSACS research thanks to the zumba dancers. The zumbathon, organized by Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, took place on October 26, 2017 at UQTR. Thank you to all the dancers for their participation and to the organizers of the event. Photos of the evening.
“Nothing stops François and Laurent, not even the Ataxia of Charlevoix-Saguenay. The two young brothers excel in sledge hockey which allows them to practice their favorite sport” Interview with Frédéric Lacroix – Couture, L’ express Mont-Royal, November 2017. (French version only).
Dr. Bernard Brais, a key member of the ARSACS research team since the beginning, has been named the “Personality of the week” by La Presse newspaper. Interview by Marie-Claude Lortie from La Presse (in French only).
On October 26th, the 11th edition of the “Diner des Producteurs ” was held under the honorary presidency of Mr. Jean-Guy Desjardins, Fiera Capital. A record net amount of $ 1.2M was raised. Thank you to all those who contributed to the success of this unique evening and whose donations support medical research.
The next meeting of the Board of Directors of the Foundation Ataxia Charlevoix- Saguenay will be held on Monday December 4,2017.
Marie-Claude Desormiers, suffering from ARSACS, gave an interview in October to Sonia Gobeil of the Charlevoix-Saguenay Ataxia Foundation. Interview with Marie-Claude, a courageous and determined person.
Research on ARSACS is making progress. 2017 is the first year where therapeutic breakthroughs for this disease are emerging. Update report prepared by Dr. Bernard Brais.
The 5 th ARSACS symposium will be held in Montreal in November 2018. Details to come.
Dr. Matthis Synofzik, a researcher at the University of Tuebingen funded by the ARSACS Foundation, will present his research results at the 2nd International Ataxia Conference in Pisa. His research deals with dyphrasia (language disorder in people with ARSACS). Summary.
Dre Cynthia Gagnon will be presenting at the International Ataxia Research conference . Summary of her presentation.
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