“From motor performance to participation: a quantitative descriptive study in adults with autosomal recessive spastic ataxia of Charlevoix-Saguenay” a study which evaluates the motor performance of individuals with ARSACS, was published in the Orphanet Journal of Rare Diseases on September 19, 2018. Drs.Cynthia Gagnon, Bernard Brais, Isabelle Lessard, Caroline Lavoie, Isabelle Côté and Jean Mathieu participated in the study.