The Organizzazione di volontariato (ODV) finances 2 ARSACS projects with the support from the Fondazione Telethon. Project details.

ODV is a volunteer organisation founded by Susanna Deluca and Dr. Paolo  Arrigoni and dedicated to the ARSACS cause. Telethon is an Italian non-profit organisation involved in scientific research on rare diseases. Telethon managed the call and the peer review process for this research.