by ARSACS | Apr 11, 2021 | News Archives
Send us your ARSACS research proposal by Friday May 28, 2021. You could receive up to $100,000 for a period of one year with possibility of renewal for a second year. Application form and Appendix.
by ARSACS | Apr 7, 2021 | News Archives
Save November 4th, 2021 for the 6th International ARSACS Symposium. The keynote speaker will be Dr. Jeremy Schmahmann from the Massachusetts General Hospital. Half-day virtual conferences, free registration, opened to all. Details to come.
by ARSACS | Feb 26, 2021 | News Archives
A virtual meeting of the Foundation’s Board of Directors will be held on Thursday March 18, 2021.
by ARSACS | Feb 22, 2021 | News Archives
The first international Rare Disease Day was celebrated in 2008 on February 29th, a rare date which occurs only every 4 years. Since then, the international Rare Disease Day has been held every year on the last day of February. This year, several online activities...
by ARSACS | Feb 17, 2021 | News Archives
As part of it’s mission, the Foundation is funding every year several research projects on ARSACS. If you are interested in contributing with a team of researchers to advance the understanding of the disease and lead to a treatment, please send us your proposal....
by ARSACS | Jan 20, 2021 | News Archives
See Invitation for the Zoom link to the virtual free conference “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)” on Thursday, January 21 at...
by ARSACS | Dec 23, 2020 | News Archives
Article Docosahexaenoic acid in ARSACS: observations in 2 patients published in BMC Neurology. The article does not necessarily reflect the views and positions of the Foundation. It engages solely the author. The Foundation does not in any way guarantee the exactitude...
by ARSACS | Dec 18, 2020 | News Archives
Help us continue research on ARSACS. Every donation counts. Donate. Thank you and Happy Holidays!
by ARSACS | Dec 11, 2020 | News Archives
The Ataxia Charlevoix-Saguenay Foundation is one of the 3 patient advocacy organisations participating in the PROgression chart of SPAstic ataXias (PROSPAX) research project. PROPSPAX, launched in September 2020, is a novel collaborative effort between several...
by ARSACS | Dec 8, 2020 | News Archives
Thank you to the donors who celebrated Sharline’s birthday by giving to ARSACS research.
by ARSACS | Nov 30, 2020 | News Archives
This year, the Diner des Producteurs, the major fundraising event for ARSACS research, did not take place due to the pandemic. The Foundation cannot resign itself to terminate medical research funding. Accordingly, the Foundation is launching today its 2020-2021...
by ARSACS | Nov 27, 2020 | News Archives
Dr. Jacques Michaud is the recipient of the prestigious Pediatric Academic Leadership Clinician Investigator Award 2020. Dr. Guy Rouleau has been appointed to the Order of Canada for his excellence in clinical care and research. Dr. Rouleau and Dr. Michaud are members...
by ARSACS | Nov 26, 2020 | News Archives
As part of its mission, the Foundation is pleased to fund Dr. Walid Houry’s ARSACS research project “Towards the Structural Determination of Sacsin”. This project is in addition to the other seven projects already funded for 2020-2021 .
by ARSACS | Nov 17, 2020 | News Archives
Dr. Gentil’s virtual conference «La recherche de thérapies géniques et de complémentation dans le traitement de l’ARSACS » French session on Thursday Nov 19 at 1:30pm.
by ARSACS | Nov 10, 2020 | News Archives
The next virtual meeting of the Foundation Board of Directors will be on Wednesday December 2, 2020.
by ARSACS | Nov 2, 2020 | News Archives
Dr. Gentil’s virtual conference « Research on Gene and Replacement Therapies to Treat ARSACS». Register in advance.
by ARSACS | Oct 31, 2020 | News Archives
As part of it mission to develop a treatment for ARSACS, the Foundation is pleased to announce the research projects to be funded in 2020-2021. Over $700K, including a $50K contribution from the Richardson Fund (University of Saskatchewan), will be allocated to these...
by ARSACS | Oct 13, 2020 | News Archives
An excellent source of information on ARSACS published in the GeneReviews. GeneReviews is an online database containing peer-reviewed articles that describe specific diseases. It was established in 1997 by the University of Washington in the US.
by ARSACS | Aug 3, 2020 | News Archives
According to Dr. Luc J. Hébert’s interim report , “it is becoming increasingly clear that in patients with ARSACS, the presence of inappropriate knee cocontractions is a major factor in mobility restrictions.” Dr. Hébert is the researcher responsible...
by ARSACS | Jul 13, 2020 | News Archives
Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas !
