by ARSACS | May 12, 2025 | News Archives, Past Conferences
A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. The presentation video titled “Ataxia of...
by ARSACS | May 12, 2025 | News Archives, Past Conferences
Last April, Sonia Gobeil was interviewed by CheckRare during the World Orphan Drug Congress (WODC). This is a valuable opportunity to raise awareness for ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) and to highlight the importance of ongoing...
by ARSACS | May 12, 2025 | News Archives, Past Conferences
As part of the World Orphan Drug Congress, this session was led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.
by ARSACS | May 12, 2025 | News Archives, Past Conferences
As part of the World Orphan Drug Congress, this conference was presented by Alexandre Paré (McGill PhD student).
by ARSACS | May 12, 2025 | News Archives, Past Conferences
This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the...
by ARSACS | Mar 3, 2025 | News Archives, Past Conferences
This webinar, hosted by Dr. Justin Wolter, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
by ARSACS | Feb 17, 2025 | News Archives, Past Conferences
February 14th 2025 – This webinar was presented by Sonia Gobeil (co-founder) and Dr. Benoit Gentil as part of the month of ‘Zébrier 2025’, organized by the Regroupement québécois des maladies orphelines. View here
by ARSACS | Feb 17, 2025 | News Archives, Past Conferences
February 13, 2025 – This webinar, hosted by Dr. Nicolas Dupré and Dr. Élise Duchesne, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
by ARSACS | Apr 11, 2021 | News Archives
Send us your ARSACS research proposal by Friday May 28, 2021. You could receive up to $100,000 for a period of one year with possibility of renewal for a second year. Application form and Appendix.
by ARSACS | Apr 7, 2021 | News Archives
Save November 4th, 2021 for the 6th International ARSACS Symposium. The keynote speaker will be Dr. Jeremy Schmahmann from the Massachusetts General Hospital. Half-day virtual conferences, free registration, opened to all. Details to come.
by ARSACS | Feb 26, 2021 | News Archives
A virtual meeting of the Foundation’s Board of Directors will be held on Thursday March 18, 2021.
by ARSACS | Feb 22, 2021 | News Archives
The first international Rare Disease Day was celebrated in 2008 on February 29th, a rare date which occurs only every 4 years. Since then, the international Rare Disease Day has been held every year on the last day of February. This year, several online activities...
by ARSACS | Feb 17, 2021 | News Archives
As part of it’s mission, the Foundation is funding every year several research projects on ARSACS. If you are interested in contributing with a team of researchers to advance the understanding of the disease and lead to a treatment, please send us your proposal....
by ARSACS | Jan 20, 2021 | News Archives
See Invitation for the Zoom link to the virtual free conference “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)” on Thursday, January 21 at...
by ARSACS | Dec 23, 2020 | News Archives
Article Docosahexaenoic acid in ARSACS: observations in 2 patients published in BMC Neurology. The article does not necessarily reflect the views and positions of the Foundation. It engages solely the author. The Foundation does not in any way guarantee the exactitude...
by ARSACS | Dec 18, 2020 | News Archives
Help us continue research on ARSACS. Every donation counts. Donate. Thank you and Happy Holidays!
by ARSACS | Dec 11, 2020 | News Archives
The Ataxia Charlevoix-Saguenay Foundation is one of the 3 patient advocacy organisations participating in the PROgression chart of SPAstic ataXias (PROSPAX) research project. PROPSPAX, launched in September 2020, is a novel collaborative effort between several...
by ARSACS | Dec 8, 2020 | News Archives
Thank you to the donors who celebrated Sharline’s birthday by giving to ARSACS research.
by ARSACS | Nov 30, 2020 | News Archives
This year, the Diner des Producteurs, the major fundraising event for ARSACS research, did not take place due to the pandemic. The Foundation cannot resign itself to terminate medical research funding. Accordingly, the Foundation is launching today its 2020-2021...
by ARSACS | Nov 27, 2020 | News Archives
Dr. Jacques Michaud is the recipient of the prestigious Pediatric Academic Leadership Clinician Investigator Award 2020. Dr. Guy Rouleau has been appointed to the Order of Canada for his excellence in clinical care and research. Dr. Rouleau and Dr. Michaud are members...
