Foundation-Funded Project Featured at ASGCT 2025

A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. In parallel, we are making the presentation video...

Dr. Simon Girard’s Research Report

The final report of the research project “Discovery of New ARSACS Modifier Genes in the Saguenay Founder Population” led by Dr. Simon Girard is now available. Funded by the Foundation for the 2023-2024 period, this project has provided genealogical data for 166...

Zumbathon for ARSACS: Moving for the Cause

A huge thank you to Ms. Annie Tardif for her outstanding commitment! On March 23, she organized a Zumbathon in honor of a family close to her with two children affected by ARSACS. All donations were given to the Foundation to support research and families impacted by...

Supporting Research: A Priority for the Foundation

Discover the journey of Betsy Trainor, board member of the Ataxia Charlevoix-Saguenay Foundation, and her commitment to research. Thanks to the Foundation’s funding, Dr. Schmahmann is studying an FDA-approved drug to assess its potential for ARSACS. Read the...

1.5 MILLION THANKS!

Thanks to your incredible generosity, this year’s Dîner des Producteurs raised a record-breaking amount of $1.5 million to support research. A huge thank you to:​ Our honorary chairs, Mr. Bigras and Ms. Lafleur, for their inspiring leadership.​ Our generous...

A Generous Contribution to Support ARSACS Research

The Charlevoix-Saguenay Ataxia Foundation is honored to receive a donation of $340,000 from the Richardson Research Trust. We extend our sincere gratitude to Mr. Lawrence and Mrs. Lucille Richardson for their generosity, which plays a vital role in driving our mission...

Ms. Marie-Eve Duguay is Joining the Foundation

The Ataxie Charlevoix-Saguenay Foundation is pleased to announce the arrival of Ms. Marie-Eve Duguay as Director.​ With her extensive experience in the healthcare field, Marie-Eve will oversee operations while developing strategic partnerships and optimizing internal...