Conferences & Events

Upcoming Conferences and Events

World Orphan Drug Congress in Boston, April 22-24, 2025

This congress provides a forum to discuss and advance orphan drug development and enhance access to life-saving therapies for individuals living with a rare disease.

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Conference 'Development of a gene therapy for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay; challenges and success' – Boston, April 22, 2025, at 4:00

As part of the World Orphan Drug Congress, this conference will be presented by Alexandre Paré (McGill PhD student).

Registration (50% promo code: ARSACS50)

Fireside Chat Session 'ARSACS (Ataxia Charlevoix-Saguenay): Finding solutions for rare disease patients' – Boston, April 23, 2025, at 2:30 PM

As part of the World Orphan Drug Congress, this session will be led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.

Registration (50% promo code: ARSACS50)

Past Conferences and Events

Webinar ‘All about ARSACS’

February 13, 2025 - This webinar, hosted by Dr. Nicolas Dupré and Dr. Élise Duchesne, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars

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The 6th International Symposium on ARSACS – A success!

More than 200 participants from different backgrounds (academic, pharmaceutical and people with ARSACS) participated in the Symposium. An international network of ARSACS researchers who shared their research progress in a climate of collaboration and exchange of...

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Canadian Society of Molecular Biosciences conference

A virtual conference to be held on June 14-17, 2021. This scientific conference has relevance to ARSACS. The theme is protein homeostasis, or proteostasis, which include the systems for production and folding of proteins, and the quality control repair and degradation...

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Dre Gagnon at the International Ataxia Research Conference

Dr. Cynthia Gagnon with her PHD student Mrs. Isabelle Lessard presented at the International Ataxia Research conference held on September 27-30, 2017 in Pisa, Italy. The focus of the conference was a comprehensive scientific review of new research from disease...

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Fourth International Symposium on ARSACS

Several researchers from different countries participated in the 4th Symposium on ARSACS held on November 10 &11 at the Neuro in Montreal. This conference provided an opportunity for researchers to share their knowledge and to discuss the progress of their...

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Third International Symposium on ARSACS

December 26, 2014 - On November 12th and 13th,2014, The Montreal Neurological Institute and Hospital hosted the 3rd International Symposium focusing on advances in understanding ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) in the larger context...

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International Symposium on ARSACS in 2011

As part of the congress organised by the International Federation of Human Genetcis Societies held on October 11 2011 in Montréal, there was an international symposium on ARSACS organised by Dr. Brais on October 17. In fact, 35 researchers attended the International...

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