{"id":13780,"date":"2021-04-29T23:09:50","date_gmt":"2021-04-30T03:09:50","guid":{"rendered":"https:\/\/clone.arsacs.com\/patients\/"},"modified":"2021-06-09T18:25:28","modified_gmt":"2021-06-09T22:25:28","slug":"patients","status":"publish","type":"page","link":"https:\/\/arsacs.com\/es\/patients\/","title":{"rendered":"Pacientes"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|tablet&#8221; next_background_color=&#8221;#ffffff&#8221; admin_label=&#8221;Hero&#8221; _builder_version=&#8221;4.8.2&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_start=&#8221;rgba(255,255,255,0)&#8221; background_color_gradient_end=&#8221;#26a9e4&#8243; background_color_gradient_type=&#8221;radial&#8221; background_color_gradient_direction_radial=&#8221;top right&#8221; background_color_gradient_start_position=&#8221;20%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/03\/banner-general-1-scaled.jpg&#8221; custom_padding=&#8221;47px|0px|87px|0px|false|false&#8221; custom_padding_tablet=&#8221;50px||50px||true&#8221; custom_padding_phone=&#8221;|||&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_height=&#8221;50px&#8221; bottom_divider_flip=&#8221;horizontal&#8221; bottom_divider_height_tablet=&#8221;90px&#8221; bottom_divider_height_phone=&#8221;80px&#8221;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; _builder_version=&#8221;3.25&#8243; custom_width_px=&#8221;1280px&#8221;][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.9.4&#8243; text_font=&#8221;Montserrat||||||||&#8221; text_text_color=&#8221;rgba(255,255,255,0.7)&#8221; text_font_size=&#8221;20px&#8221; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;Montserrat|700|||||||&#8221; header_font_size=&#8221;44px&#8221; header_line_height=&#8221;1.4em&#8221; header_6_font=&#8221;Montserrat|600||on|||||&#8221; header_6_text_color=&#8221;rgba(255,255,255,0.7)&#8221; header_6_font_size=&#8221;16px&#8221; header_6_letter_spacing=&#8221;2px&#8221; header_6_line_height=&#8221;1.5em&#8221; background_layout=&#8221;dark&#8221; max_width=&#8221;780px&#8221; min_height=&#8221;39px&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;15px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; header_font_size_tablet=&#8221;&#8221; header_font_size_phone=&#8221;28px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221;]<\/p>\n<h1>Pacientes<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; next_background_color=&#8221;#B48BDA&#8221; admin_label=&#8221;globe section&#8221; module_id=&#8221;patient-registry&#8221; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/05\/registry-globe-isolated-topleftt.jpg&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||120px||false|false&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_height=&#8221;50px&#8221; bottom_divider_flip=&#8221;horizontal&#8221;][et_pb_row column_structure=&#8221;1_3,2_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;1260px&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_cta title=&#8221;Registro Internacional de Pacientes&#8221; button_url=&#8221;https:\/\/arsacs.com\/es\/registro\/&#8221; button_text=&#8221;Reg\u00edstrese aqu\u00ed&#8221; _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;left&#8221; header_font_size=&#8221;30px&#8221; header_line_height=&#8221;1.5em&#8221; body_text_align=&#8221;left&#8221; body_font_size=&#8221;16px&#8221; background_color=&#8221;rgba(0,173,232,0.9)&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#F7931E&#8221; button_border_color=&#8221;RGBA(0,0,0,0)&#8221; button_border_radius=&#8221;30px&#8221; button_font=&#8221;|700|||||||&#8221; button_icon=&#8221;%%24%%&#8221; button_on_hover=&#8221;off&#8221; button_alignment=&#8221;left&#8221; button_custom_padding=&#8221;10px|40px|10px|20px|true|false&#8221; width=&#8221;100%&#8221; module_alignment=&#8221;left&#8221; hover_enabled=&#8221;0&#8243; border_radii=&#8221;on|6px|6px|6px|6px&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p><strong>Invitaci\u00f3n a formar parte del Registro Internacional de Pacientes con ARSACS si usted o un familiar fue diagnosticado con ARSACS. Esta invitaci\u00f3n es v\u00e1lida, incluso si ya se uni\u00f3 a otro registro de pacientes.<\/strong><\/p>\n<p>El Registro Internacional de Pacientes con ARSACS es un conjunto de informaci\u00f3n b\u00e1sica sobre pacientes diagnosticados con ARSACS, m\u00e1s all\u00e1 del pa\u00eds de residencia. Su participaci\u00f3n en este registro ayudar\u00e1 enormemente al desarrollo de tratamientos para este desorden.\u00a0 El objetivo del registro es facilitar el contacto entre los investigadores que trabajan y los pacientes que desean recibir informaci\u00f3n sobre la participaci\u00f3n en ensayos cl\u00ednicos. Adem\u00e1s de ser una herramienta esencial para los investigadores, el registro de pacientes brinda una estimaci\u00f3n del tama\u00f1o del mercado y del potencial para la inscripci\u00f3n de ensayos. Estos son aspectos fundamentales al momento de analizar las posibilidades de desarrollar medicamentos con las empresas farmac\u00e9uticas.<\/p>\n<p>La comunidad investigadora necesita de los pacientes, y esta es una forma de que ayuden a encontrar un tratamiento.<\/p>\n<p>[\/et_pb_cta][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_3,1_3,1_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;1260px&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_cta title=&#8221;ARSACS International Patient Registry&#8221; button_url=&#8221;\/en\/register\/&#8221; button_text=&#8221;English&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;22px&#8221; header_line_height=&#8221;1.5em&#8221; body_text_align=&#8221;left&#8221; body_font_size=&#8221;16px&#8221; background_color=&#8221;rgba(0,173,232,0.9)&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#F7931E&#8221; button_border_color=&#8221;RGBA(0,0,0,0)&#8221; button_border_radius=&#8221;30px&#8221; button_font=&#8221;|700|||||||&#8221; button_icon=&#8221;%%24%%&#8221; button_on_hover=&#8221;off&#8221; button_alignment=&#8221;center&#8221; button_custom_padding=&#8221;10px|40px|10px|20px|true|false&#8221; width=&#8221;100%&#8221; max_width=&#8221;400px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;15px|15px|15px|15px|true|true&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221;][\/et_pb_cta][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_cta title=&#8221;Registre international des patients ARSACS&#8221; button_url=&#8221;\/fr\/inscription\/&#8221; button_text=&#8221;Francais&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;22px&#8221; header_line_height=&#8221;1.5em&#8221; body_text_align=&#8221;left&#8221; body_font_size=&#8221;16px&#8221; background_color=&#8221;rgba(0,173,232,0.9)&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#F7931E&#8221; button_border_color=&#8221;RGBA(0,0,0,0)&#8221; button_border_radius=&#8221;30px&#8221; button_font=&#8221;|700|||||||&#8221; button_icon=&#8221;%%24%%&#8221; button_on_hover=&#8221;off&#8221; button_alignment=&#8221;center&#8221; button_custom_padding=&#8221;10px|40px|10px|20px|true|false&#8221; width=&#8221;100%&#8221; max_width=&#8221;400px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;15px|15px|15px|15px|true|true&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221;][\/et_pb_cta][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_cta title=&#8221;Registro internazionale dei pazienti ARSACS&#8221; button_url=&#8221;\/it\/registro\/&#8221; button_text=&#8221;Italiano&#8221; _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;22px&#8221; header_line_height=&#8221;1.5em&#8221; body_text_align=&#8221;left&#8221; body_font_size=&#8221;16px&#8221; background_color=&#8221;rgba(0,173,232,0.9)&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#F7931E&#8221; button_border_color=&#8221;RGBA(0,0,0,0)&#8221; button_border_radius=&#8221;30px&#8221; button_font=&#8221;|700|||||||&#8221; button_icon=&#8221;%%24%%&#8221; button_on_hover=&#8221;off&#8221; button_alignment=&#8221;center&#8221; button_custom_padding=&#8221;10px|40px|10px|20px|true|false&#8221; width=&#8221;100%&#8221; max_width=&#8221;400px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;15px|15px|15px|15px|true|true&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221;][\/et_pb_cta][et_pb_cta title=&#8221;Registro Internacional de Pacientes ARSACS&#8221; button_url=&#8221;\/es\/patient-registry\/&#8221; button_text=&#8221;Espa\u00f1ol&#8221; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;22px&#8221; header_line_height=&#8221;1.5em&#8221; body_text_align=&#8221;left&#8221; body_font_size=&#8221;16px&#8221; background_color=&#8221;rgba(0,173,232,0.9)&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#F7931E&#8221; button_border_color=&#8221;RGBA(0,0,0,0)&#8221; button_border_radius=&#8221;30px&#8221; button_font=&#8221;|700|||||||&#8221; button_icon=&#8221;%%24%%&#8221; button_on_hover=&#8221;off&#8221; button_alignment=&#8221;center&#8221; button_custom_padding=&#8221;10px|40px|10px|20px|true|false&#8221; width=&#8221;100%&#8221; max_width=&#8221;400px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;15px|15px|15px|15px|true|true&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; disabled=&#8221;on&#8221;][\/et_pb_cta][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#dbdee3&#8243; width=&#8221;100%&#8221; max_width=&#8221;1260px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;30px|50px|30px|50px|true|true&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_text _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;]<\/p>\n<h3><strong>You are not alone <\/strong><\/h3>\n<p>If you have been diagnosed with ARSACS, you are not alone. Persons affected with ARSACS are found all over the word. According to the Foundation\u2019s ARSACS International Patient Registry statistics, <a href=\"https:\/\/arsacs.com\/wp-content\/uploads\/2021\/04\/Paolo_mappa9.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">ARSACS is found in all continents.<\/a><\/p>\n<h5><\/h5>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/05\/ARSACS-aroundtheworld-registrymap.jpg&#8221; title_text=&#8221;ARSACS-aroundtheworld-registrymap&#8221; url=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/04\/Paolo_mappa9.pdf&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/05\/ARSACS-aroundtheworld-stats1b.jpg&#8221; title_text=&#8221;ARSACS-aroundtheworld-stats1b&#8221; url=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/04\/Paolo_mappa9.pdf&#8221; url_new_window=&#8221;on&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/05\/ARSACS-aroundtheworld-stats2.jpg&#8221; title_text=&#8221;ARSACS-aroundtheworld-stats2&#8243; url=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/04\/Paolo_mappa9.pdf&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Services&#8221; module_id=&#8221;connect-community&#8221; _builder_version=&#8221;4.8.2&#8243; background_color=&#8221;#B48BDA&#8221; background_color_gradient_direction=&#8221;0deg&#8221; custom_padding=&#8221;|||&#8221;][et_pb_row _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_text _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;Montserrat|700|||||||&#8221; header_line_height=&#8221;1.4em&#8221;]<\/p>\n<h1><strong>Your voice is very important. Make your voice heard by participating in ARSACS research. <\/strong><\/h1>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Contact Info&#8221; module_id=&#8221;clinical-trials&#8221; _builder_version=&#8221;4.8.2&#8243; background_color=&#8221;#FFB8FA&#8221; background_color_gradient_direction=&#8221;0deg&#8221; min_height=&#8221;488px&#8221; custom_padding=&#8221;|||&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_text _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Montserrat||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; header_2_font=&#8221;Montserrat|700|||||||&#8221; header_2_font_size=&#8221;40px&#8221; header_2_line_height=&#8221;1.4em&#8221; header_6_font=&#8221;Montserrat|600||on|||||&#8221; header_6_text_color=&#8221;#F7931E&#8221; header_6_font_size=&#8221;16px&#8221; header_6_letter_spacing=&#8221;2px&#8221; header_6_line_height=&#8221;1.5em&#8221;]<\/p>\n<h6><\/h6>\n<h2>PROSPAX <\/h2>\n<p><span>The Ataxia Charlevoix-Saguenay Foundation is one of the 3 patient advocacy organisations participating in the<\/span><span> <\/span><strong>PRO<\/strong><span>gression chart of<\/span><span> <\/span><strong>SPA<\/strong><span>stic ata<\/span><strong>X<\/strong><span>ias (PROSPAX) research project. PROPSPAX, a 3 year project launched in September 2020, is a novel collaborative effort between several neurologists across Canada and Europe.<\/span><span> <\/span><br \/> <span>It is an unique opportunity for patients to have their voice heard by researchers, to make sure that the questions they are trying to answer are the ones that are important to a person living with the condition.<\/span><span> <\/span><span>The PROSPAX project will focus on two conditions \u2013 ARSACS and SPG7. There is a patient survey currently under development and your participation in the survey is crucial. Stay tuned. <\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_text _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Montserrat||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; header_2_font=&#8221;Montserrat|700|||||||&#8221; header_2_font_size=&#8221;40px&#8221; header_2_line_height=&#8221;1.4em&#8221; header_6_font=&#8221;Montserrat|600||on|||||&#8221; header_6_text_color=&#8221;#F7931E&#8221; header_6_font_size=&#8221;16px&#8221; header_6_letter_spacing=&#8221;2px&#8221; header_6_line_height=&#8221;1.5em&#8221;]<\/p>\n<h6><\/h6>\n<h2>TREAT- ARCA<\/h2>\n<p><span>The Foundation is pleased to represent the ARSACS patients on the research project <\/span><em>\u201cDesigning a toolbox of paradigmatic treatments for a targeted molecular medicine approach to autosomal-recessive ataxias\u201d<\/em><span>. The project has received funding from the European Union\u2019s Horizon 2020 research and innovation programme under the European Joint Program Rare Disease. <\/span><\/p>\n<p><span>The specific objective is the pre-clinical-research to develop effective therapies for rare diseases. It aims at designing and testing new complementary treatment strategies, including both repurposed and newly identified molecules, as well as gene therapies in two exemplary multisystemic flagship ARCAS: Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) and COQ8A-ataxia (ARCA2). It is a 3 year project.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; prev_background_color=&#8221;#FFB8FA&#8221; admin_label=&#8221;FAQ&#8221; module_id=&#8221;research-study&#8221; _builder_version=&#8221;4.8.2&#8243; background_color=&#8221;#8CA1ED&#8221; module_alignment=&#8221;right&#8221; custom_padding=&#8221;100px|0px|100px|0px|true|false&#8221; top_divider_style=&#8221;asymmetric&#8221; top_divider_height=&#8221;50px&#8221; top_divider_flip=&#8221;horizontal&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_color=&#8221;#edeffa&#8221; bottom_divider_height=&#8221;50px&#8221; bottom_divider_flip=&#8221;horizontal&#8221;][et_pb_row _builder_version=&#8221;3.25&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.9.4&#8243; text_font=&#8221;Montserrat||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; link_font=&#8221;Montserrat|700|||||||&#8221; link_text_color=&#8221;#fa546d&#8221; link_font_size=&#8221;22px&#8221; link_line_height=&#8221;1.5em&#8221; header_font=&#8221;||||||||&#8221; header_2_font=&#8221;Montserrat|700|||||||&#8221; header_2_font_size=&#8221;40px&#8221; header_2_line_height=&#8221;1.4em&#8221; header_6_font=&#8221;Montserrat|600||on|||||&#8221; header_6_text_color=&#8221;#fa546d&#8221; header_6_font_size=&#8221;16px&#8221; header_6_letter_spacing=&#8221;2px&#8221; header_6_line_height=&#8221;1.5em&#8221; background_layout=&#8221;dark&#8221; max_width_last_edited=&#8221;off|desktop&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;|||&#8221; custom_padding=&#8221;|||&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;24px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221;]<\/p>\n<h2><span style=\"color: #000000;\">Preclinical and clinical trials<\/span><\/h2>\n<p><span style=\"color: #000000;\"> <strong>The Foundation is ready to conduct preclinical and clinical trials. It has the expertise and the tools available and is always looking at opportunities to do clinical trials. However, the participation of ARSACS patients is crucial to conduct such trials. <\/strong><\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|tablet&#8221; admin_label=&#8221;Live Chat&#8221; _builder_version=&#8221;4.8.2&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_start=&#8221;rgba(237,239,250,0)&#8221; background_color_gradient_end=&#8221;#edeffa&#8221; background_color_gradient_type=&#8221;radial&#8221; background_color_gradient_direction_radial=&#8221;top left&#8221; background_color_gradient_start_position=&#8221;20%&#8221; background_color_gradient_end_position=&#8221;80%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/03\/donate1.12.png&#8221; background_position=&#8221;top_left&#8221; module_alignment=&#8221;right&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;|0%||0%&#8221; custom_margin_last_edited=&#8221;off|desktop&#8221; custom_padding=&#8221;0px|0px|0|0px|false|false&#8221; custom_padding_tablet=&#8221;|||&#8221; custom_padding_phone=&#8221;&#8221; top_divider_arrangement=&#8221;above_content&#8221; top_divider_height_tablet=&#8221;90px&#8221; top_divider_height_phone=&#8221;90px&#8221; bottom_divider_style=&#8221;asymmetric3&#8243; bottom_divider_color=&#8221;#ffffff&#8221; bottom_divider_height=&#8221;100%&#8221; bottom_divider_repeat=&#8221;0.6x&#8221; bottom_divider_flip=&#8221;horizontal&#8221; bottom_divider_arrangement=&#8221;above_content&#8221; bottom_divider_height_tablet=&#8221;90px&#8221; bottom_divider_height_phone=&#8221;90px&#8221; bottom_divider_height_last_edited=&#8221;on|phone&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;left&#8221; animation_intensity_slide=&#8221;4%&#8221; module_alignment_tablet=&#8221;&#8221; module_alignment_phone=&#8221;&#8221; module_alignment_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.8.2&#8243; width=&#8221;89.7%&#8221; max_width=&#8221;100%&#8221; custom_margin=&#8221;|||0%&#8221; custom_margin_tablet=&#8221;|||&#8221; custom_margin_last_edited=&#8221;off|desktop&#8221; custom_padding=&#8221;0|6.1%|5px|0px|false|false&#8221; custom_padding_tablet=&#8221;|0%||&#8221; custom_padding_phone=&#8221;&#8221; use_custom_width=&#8221;on&#8221; width_unit=&#8221;off&#8221; custom_width_percent=&#8221;100%&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_divider show_divider=&#8221;off&#8221; _builder_version=&#8221;4.8.2&#8243; height=&#8221;300px&#8221;][\/et_pb_divider][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;100px||20%|&#8221; custom_padding_tablet=&#8221;|10%||10%&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; padding_tablet=&#8221;|10%||10%&#8221; padding_last_edited=&#8221;on|desktop&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.8.2&#8243; text_font=&#8221;Montserrat||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; link_font=&#8221;Montserrat|700|||||||&#8221; link_text_color=&#8221;#fa546d&#8221; link_font_size=&#8221;22px&#8221; link_line_height=&#8221;1.5em&#8221; header_font=&#8221;||||||||&#8221; header_2_font=&#8221;Montserrat|700|||||||&#8221; header_2_font_size=&#8221;40px&#8221; header_2_line_height=&#8221;1.4em&#8221; header_6_font=&#8221;Montserrat|600||on|||||&#8221; header_6_text_color=&#8221;#fa546d&#8221; header_6_font_size=&#8221;16px&#8221; header_6_letter_spacing=&#8221;2px&#8221; header_6_line_height=&#8221;1.5em&#8221; width=&#8221;89.2%&#8221; max_width_last_edited=&#8221;off|desktop&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;|32px|||false|false&#8221; custom_padding=&#8221;|||&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;24px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221;]<\/p>\n<h6><\/h6>\n<h2 style=\"text-align: left;\">Research that heals so there is hope<\/h2>\n<p><strong>The Foundation&#8217;s mission is to discover and develop a treatment for the Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).<\/strong><\/p>\n<p><strong>Progress has been made over the years in identifying the source of the disorder. Your support is crucial to continue funding high potential projects as well as a clinical trial.<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/arsacs.com\/donate&#8221; button_text=&#8221;Donar&#8221; _builder_version=&#8221;4.8.2&#8243; _dynamic_attributes=&#8221;button_url&#8221; button_text_color=&#8221;#ffffff&#8221; button_bg_color=&#8221;#52A2EC&#8221; box_shadow_style=&#8221;preset3&#8243; button_text_color_hover=&#8221;#ffffff&#8221; button_border_radius_hover=&#8221;100px&#8221; button_bg_color_hover=&#8221;rgba(1,77,183,0.8)&#8221; locked=&#8221;off&#8221; button_text_size__hover_enabled=&#8221;off&#8221; button_one_text_size__hover_enabled=&#8221;off&#8221; button_two_text_size__hover_enabled=&#8221;off&#8221; button_text_color__hover_enabled=&#8221;on&#8221; button_text_color__hover=&#8221;#ffffff&#8221; button_one_text_color__hover_enabled=&#8221;off&#8221; button_two_text_color__hover_enabled=&#8221;off&#8221; button_border_width__hover_enabled=&#8221;off&#8221; button_one_border_width__hover_enabled=&#8221;off&#8221; button_two_border_width__hover_enabled=&#8221;off&#8221; button_border_color__hover_enabled=&#8221;off&#8221; button_one_border_color__hover_enabled=&#8221;off&#8221; button_two_border_color__hover_enabled=&#8221;off&#8221; button_border_radius__hover_enabled=&#8221;on&#8221; button_border_radius__hover=&#8221;100px&#8221; button_one_border_radius__hover_enabled=&#8221;off&#8221; button_two_border_radius__hover_enabled=&#8221;off&#8221; button_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_bg_color__hover_enabled=&#8221;on&#8221; button_bg_color__hover=&#8221;rgba(1,77,183,0.8)&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Services&#8221; module_id=&#8221;connect-community&#8221; _builder_version=&#8221;4.8.2&#8243; background_color=&#8221;#ffffff&#8221; background_color_gradient_direction=&#8221;0deg&#8221; custom_padding=&#8221;|||&#8221;][et_pb_row _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.8.2&#8243; _module_preset=&#8221;default&#8221;][et_pb_text _builder_version=&#8221;4.9.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|600|||||||&#8221; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;Montserrat|700|||||||&#8221; header_font_size=&#8221;40px&#8221; header_line_height=&#8221;1.4em&#8221;]<\/p>\n<h1>Connect with the ARSACS community online<\/h1>\n<p>Stay tuned on the latest news and development. Join the ARSACS community via the different social media Facebook, Twitter, Linked In.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_3,1_3,1_3&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; custom_padding_last_edited=&#8221;off|desktop&#8221; module_class=&#8221; et_pb_row_fullwidth&#8221; _builder_version=&#8221;3.25&#8243; width=&#8221;94%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;&#8221; width_last_edited=&#8221;on|desktop&#8221; max_width=&#8221;94%&#8221; max_width_tablet=&#8221;80%&#8221; max_width_phone=&#8221;&#8221; max_width_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;|||&#8221; make_fullwidth=&#8221;on&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb title=&#8221;Facebook&#8221; url=&#8221;https:\/\/www.facebook.com\/FoundationFondation-Arsacs-103009407962282&#8243; use_icon=&#8221;on&#8221; font_icon=&#8221;%%314%%&#8221; icon_color=&#8221;rgba(1,77,183,0.9)&#8221; use_icon_font_size=&#8221;on&#8221; icon_font_size=&#8221;60px&#8221; _builder_version=&#8221;4.8.2&#8243; header_font=&#8221;Montserrat|600|||||||&#8221; header_text_color=&#8221;rgba(1,77,183,0.9)&#8221; header_line_height=&#8221;1.5em&#8221; body_font=&#8221;Montserrat||||||||&#8221; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;2em&#8221; background_color=&#8221;#8ab6f7&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_start=&#8221;rgba(138,182,247,0.3)&#8221; background_color_gradient_end=&#8221;#8ab6f7&#8243; background_color_gradient_end_position=&#8221;56%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/03\/pharmacy-12-1.jpg&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;||30px|&#8221; 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background_image=&#8221;https:\/\/arsacs.com\/wp-content\/uploads\/2021\/03\/pharmacy-09-1.jpg&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;|||&#8221; custom_margin_tablet=&#8221;||30px|&#8221; custom_margin_phone=&#8221;|||&#8221; custom_margin_last_edited=&#8221;off|desktop&#8221; custom_padding=&#8221;50px|20px|50px|20px|true|true&#8221; custom_padding_last_edited=&#8221;off|desktop&#8221; animation_style=&#8221;fold&#8221; animation_delay=&#8221;300ms&#8221; animation_intensity_fold=&#8221;30%&#8221; animation=&#8221;off&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; locked=&#8221;off&#8221;]<\/p>\n<p>Coming Soon<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;off|desktop&#8221; prev_background_color=&#8221;#ffffff&#8221; admin_label=&#8221;Footer&#8221; module_id=&#8221;contact-footer&#8221; _builder_version=&#8221;4.8.2&#8243; 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