{"id":13705,"date":"2021-06-08T09:57:44","date_gmt":"2021-06-08T13:57:44","guid":{"rendered":"https:\/\/clone.arsacs.com\/?page_id=13705"},"modified":"2026-08-28T14:43:12","modified_gmt":"2026-08-28T18:43:12","slug":"conferences-et-evenements","status":"publish","type":"page","link":"https:\/\/arsacs.com\/fr\/conferences-events\/","title":{"rendered":"Conf\u00e9rences et \u00e9v\u00e9nements"},"content":{"rendered":"<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section\">\r\n\r\n<div class=\"et_pb_row_0 et_pb_row et_block_row\">\r\n\r\n<div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\">\r\n\r\n<div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2>Prochaines conf\u00e9rences et \u00e9v\u00e9nements<\/h2>\n<\/div><\/div><\/div><\/div>\r\n\r\n<div class=\"et_pb_row_1 et_pb_row et_flex_row\">\r\n\r\n<div class=\"et_pb_column_1 et_pb_column et-last-child et_flex_column et_pb_css_mix_blend_mode_passthrough et_flex_column_24_24 et_flex_column_24_24_tablet et_flex_column_24_24_phone\">\r\n\r\n<div class=\"et_pb_blog_0 et_pb_blog et_pb_bg_layout_light et_pb_posts et_pb_module\"><div class=\"et_pb_ajax_pagination_container\"><div class=\"et_pb_blog_posts et_grid_module\"><article class=\"et_pb_post et_pb_post_id_26405 clearfix et_pb_blog_item_0_0 post-26405 post type-post status-publish format-standard has-post-thumbnail hentry category-upcoming-conferences-and-events\"><div class=\"et_pb_image_container\"><a href=\"https:\/\/arsacs.com\/fr\/milan-2026-scientific-conference-on-arsacs-2\/\" class=\"entry-featured-image-url\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/06\/pexels-freestockpro-9275222-scaled-1.jpg\" width=\"400\" height=\"250\" alt=\"arsacs conference\" class=\"\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/06\/pexels-freestockpro-9275222-scaled-1.jpg 479w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/06\/pexels-freestockpro-9275222-scaled-1-400x250.jpg 480w\" sizes=\"(max-width:479px) 479px, 100vw\" \/><span data-icon=\"\ue050\" class=\"et_overlay et_pb_inline_icon\"><\/span><\/a><\/div><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/milan-2026-scientific-conference-on-arsacs-2\/\">Milan 2026 : Conf\u00e9rence scientifique sur l'ARSACS<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">5 juin 2026<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>La Fondation a le plaisir de participer au colloque scientifique intitul\u00e9 \u201c Focusing on Rare Conditions : Advances, Challenges and New Horizons in ARSACS \u201d, qui se tiendra \u00e0 Milan le 24 septembre 2026. Parmi les organisateurs de cet \u00e9v\u00e9nement exceptionnel figure ARSACS\u2026.<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/milan-2026-scientific-conference-on-arsacs-2\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_23883 clearfix et_pb_blog_item_0_1 post-23883 post type-post status-publish format-standard has-post-thumbnail hentry category-news category-upcoming-conferences-and-events\"><div class=\"et_pb_image_container\"><a href=\"https:\/\/arsacs.com\/fr\/8th-edition-of-the-arsacs-symposium\/\" class=\"entry-featured-image-url\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/ChatGPT-Image-Jan-27-2026-10_47_19-AM.jpg\" width=\"400\" height=\"250\" alt=\"8\u00e8me \u00e9dition du Symposium ARSACS\" class=\"\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/ChatGPT-Image-Jan-27-2026-10_47_19-AM.jpg 479w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/ChatGPT-Image-Jan-27-2026-10_47_19-AM-400x250.jpg 480w\" sizes=\"(max-width:479px) 479px, 100vw\" \/><span data-icon=\"\ue050\" class=\"et_overlay et_pb_inline_icon\"><\/span><\/a><\/div><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/8th-edition-of-the-arsacs-symposium\/\">8\u00e8me \u00e9dition du Symposium ARSACS<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">5 mars 2026<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Nous avons le plaisir de vous annoncer la 8e \u00e9dition du Symposium ARSACS, qui se tiendra le 9 novembre 2026 en tant que r\u00e9union satellite officielle du Congr\u00e8s international pour la recherche sur l'ataxie (ICAR) \u00e0 Atlanta. Cet \u00e9v\u00e9nement en pr\u00e9sentiel r\u00e9unira des chercheurs de premier plan et...<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/8th-edition-of-the-arsacs-symposium\/\" class=\"more-link\">read more...<\/a><\/div><\/article><\/div><\/div><\/div><\/div><\/div><\/div>\r\n\r\n<div class=\"et_pb_section_1 et_pb_section et_section_regular et_block_section\" id=\"past-conferences\">\r\n\r\n<div class=\"et_pb_row_2 et_pb_row et_block_row\">\r\n\r\n<div class=\"et_pb_column_2 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\">\r\n\r\n<div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h1>Conf\u00e9rences et \u00e9v\u00e9nements pass\u00e9s<\/h1>\n<\/div><\/div><\/div><\/div>\r\n\r\n<div class=\"et_pb_row_3 et_pb_row et_block_row\">\r\n\r\n<div class=\"et_pb_column_3 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\">\r\n\r\n<div class=\"et_pb_blog_1 et_pb_blog et_pb_bg_layout_light et_pb_posts et_pb_module\"><div class=\"et_pb_ajax_pagination_container\"><div class=\"et_pb_blog_posts et_grid_module\"><article class=\"et_pb_post et_pb_post_id_26394 clearfix et_pb_blog_item_1_0 post-26394 post type-post status-publish format-standard hentry category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/fireside-chat-at-wodc-amsterdam-october-29-2025-at-240-pm\/\">Discussion informelle au WODC d'Amsterdam \u2013 29 octobre 2025 \u00e0 14 h 40<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">29 octobre 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>ARSACS : Trouver des solutions pour les patients atteints de maladies rares \u2013 Sonia Gobeil et Maxine Monk<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/fireside-chat-at-wodc-amsterdam-october-29-2025-at-240-pm\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_26392 clearfix et_pb_blog_item_1_1 post-26392 post type-post status-publish format-standard hentry category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/conference-at-wodc-amsterdam-october-28-2025-at-450-pm\/\">Conf\u00e9rence au WODC d'Amsterdam \u2013 28 octobre 2025 \u00e0 16 h 50<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">28 octobre 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Une approche de th\u00e9rapie g\u00e9nique pour l'ARSACS : enseignements tir\u00e9s des mod\u00e8les pr\u00e9cliniques \u2013 Drs Francesca Maltecca et Daniel Di Ritis<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/conference-at-wodc-amsterdam-october-28-2025-at-450-pm\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_26390 clearfix et_pb_blog_item_1_2 post-26390 post type-post status-publish format-standard hentry category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/world-orphan-drug-congress-in-amsterdam-october-27-29-2025\/\">Congr\u00e8s mondial sur les m\u00e9dicaments orphelins \u00e0 Amsterdam, du 27 au 29 octobre 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">27 octobre 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>World OrphanDrug Congress Europe 2025. THE WORLD'S LEADING ORPHAN DRUG AND RARE DISEASE EVENT! 27\u201329 October 2025 RAI Congress Centre, Amsterdam JOIN US! 2,000+ Attendees 250+ Speakers 130+ Exhibitors<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/world-orphan-drug-congress-in-amsterdam-october-27-29-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_26388 clearfix et_pb_blog_item_1_3 post-26388 post type-post status-publish format-standard hentry category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/webinar-live-october-2-2025-at-1200-pm\/\">Webinaire EN DIRECT \u2013 2 octobre 2025 \u00e0 12 h 00<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">2 octobre 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>In collaboration with the Ataxia of Charlevoix-Saguenay Foundation, you are cordially invited to join the webinar presented by Drs. Benoit Gentil and Simon Girard. They will discuss the identification of mutations around the world, how the ataxia of...<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/webinar-live-october-2-2025-at-1200-pm\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_22317 clearfix et_pb_blog_item_1_4 post-22317 post type-post status-publish format-standard hentry category-news-archives category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/foundation-funded-project-featured-at-asgct-may-2025\/\">Un projet financ\u00e9 par la Fondation pr\u00e9sent\u00e9 lors du congr\u00e8s de l'ASGCT \u2013 mai 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">12 mai 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. The presentation video titled \u201cAtaxia of...<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/foundation-funded-project-featured-at-asgct-may-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_22315 clearfix et_pb_blog_item_1_5 post-22315 post type-post status-publish format-standard hentry category-news-archives category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/sonia-gobeil-interview-with-checkrare-april-2025\/\">Entretien de Sonia Gobeil avec CheckRare \u2013 avril 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">12 mai 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>En avril dernier, Sonia Gobeil a \u00e9t\u00e9 interview\u00e9e par CheckRare \u00e0 l'occasion du Congr\u00e8s mondial sur les m\u00e9dicaments orphelins (WODC). Il s'agit l\u00e0 d'une occasion pr\u00e9cieuse de sensibiliser le public \u00e0 l'ARSACS (ataxie spastique autosomique r\u00e9cessive de Charlevoix-Saguenay) et de souligner l'importance de la poursuite...<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/sonia-gobeil-interview-with-checkrare-april-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_22312 clearfix et_pb_blog_item_1_6 post-22312 post type-post status-publish format-standard hentry category-news-archives category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/fireside-chat-session-arsacs-ataxia-charlevoix-saguenay-finding-solutions-for-rare-disease-patients-boston-april-23-2025\/\">Rencontre informelle \u2018 ARSACS (Ataxie de Charlevoix-Saguenay) : trouver des solutions pour les patients atteints de maladies rares \u2019 \u2013 Boston, le 23 avril 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">12 mai 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Dans le cadre du Congr\u00e8s mondial sur les m\u00e9dicaments orphelins, cette session a \u00e9t\u00e9 anim\u00e9e par Sonia Gobeil (cofondatrice), Betsy Trainor (membre du conseil d'administration) et le Dr Jeremy Schmahmann.<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/fireside-chat-session-arsacs-ataxia-charlevoix-saguenay-finding-solutions-for-rare-disease-patients-boston-april-23-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_22310 clearfix et_pb_blog_item_1_7 post-22310 post type-post status-publish format-standard hentry category-news-archives category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/conference-development-of-a-gene-therapy-for-autosomal-recessive-spastic-ataxia-of-charlevoix-saguenay-challenges-and-success-boston-april-22-2025\/\">Conf\u00e9rence intitul\u00e9e \u2018 D\u00e9veloppement d'une th\u00e9rapie g\u00e9nique pour l'ataxie spastique autosomique r\u00e9cessive de Charlevoix-Saguenay : d\u00e9fis et r\u00e9ussites \u2019 \u2013 Boston, le 22 avril 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">12 mai 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>Dans le cadre du Congr\u00e8s mondial sur les m\u00e9dicaments orphelins, cette conf\u00e9rence a \u00e9t\u00e9 pr\u00e9sent\u00e9e par Alexandre Par\u00e9 (doctorant \u00e0 l'universit\u00e9 McGill).<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/conference-development-of-a-gene-therapy-for-autosomal-recessive-spastic-ataxia-of-charlevoix-saguenay-challenges-and-success-boston-april-22-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><article class=\"et_pb_post et_pb_post_id_22308 clearfix et_pb_blog_item_1_8 post-22308 post type-post status-publish format-standard hentry category-news-archives category-past-conferences\"><h2 class=\"entry-title\"><a href=\"https:\/\/arsacs.com\/fr\/world-orphan-drug-congress-in-boston-april-22-24-2025\/\">Congr\u00e8s mondial sur les m\u00e9dicaments orphelins \u00e0 Boston, du 22 au 24 avril 2025<\/a><\/h2><p class=\"post-meta\"><span class=\"published\">12 mai 2025<\/span><\/p><div class=\"post-content\"><div class=\"post-content-inner\"><p>This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the...<\/p>\n<\/div><a href=\"https:\/\/arsacs.com\/fr\/world-orphan-drug-congress-in-boston-april-22-24-2025\/\" class=\"more-link\">read more...<\/a><\/div><\/article><\/div><div class=\"pagination clearfix\">\n\t<div class=\"alignleft\"><a href=\"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705\/page\/2\/?et_blog\" >&laquo; Older Entries<\/a><\/div>\n\t<div class=\"alignright\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>ARSACS : Trouver des solutions pour les patients atteints de maladies rares \u2013 Sonia Gobeil et Maxine Monk<\/p>","protected":false},"author":3,"featured_media":26408,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-13705","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=13705"}],"version-history":[{"count":41,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705\/revisions"}],"predecessor-version":[{"id":26784,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705\/revisions\/26784"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/26408"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=13705"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}