{"id":11231,"date":"2018-12-29T23:46:51","date_gmt":"2018-12-29T23:46:51","guid":{"rendered":"https:\/\/clone.arsacs.com\/invitation-to-arsacs-patients-to-join-in-these-studies\/"},"modified":"2026-03-16T18:10:46","modified_gmt":"2026-03-16T22:10:46","slug":"invitation-to-arsacs-patients-to-join-in-these-studies","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/invitation-to-arsacs-patients-to-join-in-these-studies\/","title":{"rendered":"Invitation to ARSACS patients to join in these studies"},"content":{"rendered":"An international network of ARSACS centers is conducting a multi-center study to collect natural history data and biomarkers, essential data to initiate treatment for ARSACS. We encourage you in joining in these studies and thus supporting the preparation of future treatment trials.\n\nAs an ARSACS patient, all you need to do is an outpatient visit at one of the participating centers for a a blood test (Study #1 ) and  MRI and blood sampling in the case of the more advanced study (Study #2 conducted only in centers in Quebec and Germany).\n\n<a href=\"https:\/\/arsacs.com\/fr\/files\/call for participation PREPARE ARSACS_09122018 - PROJECT NO 1.pdf\/\">Study #1 \"Participate in an International Natural History and Biomarker Study\"<\/a>\n\n<a href=\"https:\/\/arsacs.com\/fr\/files\/call for participation Biomarkers ARSACS_MS PROJECT NO 2 _E_(1).pdf\/\">Study # 2 \" Finding specific imaging and fluid biomarkers for future ARSACS treatment trials\"<\/a>\n\nFurthermore, Dr. Matthis Synofzik from University of Tubingen, Germany explains why <a href=\"https:\/\/www.youtube.com\/watch?v=t5QYRmn1FZo\" target=\"_blank\" rel=\"noopener\">ARSACS patients' participation <\/a>is very important in the development of a treatment.","protected":false},"excerpt":{"rendered":"<p>An international network of ARSACS centers is conducting a multi-center study to collect natural history data and biomarkers, essential data to initiate treatment for ARSACS. We encourage you in joining in these studies and thus supporting the preparation of future treatment trials. As an ARSACS patient, all you need to do is an outpatient visit [&#8230;]<\/p>\n","protected":false},"author":3,"featured_media":10242,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20],"tags":[],"class_list":["post-11231","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-archives"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/11231","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=11231"}],"version-history":[{"count":1,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/11231\/revisions"}],"predecessor-version":[{"id":24484,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/11231\/revisions\/24484"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/10242"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=11231"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=11231"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=11231"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}