{"id":11927,"date":"2020-01-27T20:04:53","date_gmt":"2020-01-27T20:04:53","guid":{"rendered":"https:\/\/clone.arsacs.com\/registre-international-des-patients-arsacs\/"},"modified":"2020-01-27T20:04:53","modified_gmt":"2020-01-27T20:04:53","slug":"registre-international-des-patients-arsacs","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/registre-international-des-patients-arsacs\/","title":{"rendered":"Registre international des patients ARSACS"},"content":{"rendered":"\n<p> Merci aux personnes qui ont r\u00e9pondu au courriel demandant de confirmer ou mettre \u00e0 jour leurs donn\u00e9es dans le Registre des patients ARSACS. Si vous n&#8217;avez pas encore eu l&#8217;occasion de r\u00e9pondre, veuillez envoyer un courriel \u00e0 <a href=\"mailto:administrateur@arsacs.com\">administrateur@arsacs.com<\/a> pour confirmer ou mettre \u00e0 jour vos donn\u00e9es.  Ce serait tr\u00e8s appr\u00e9ci\u00e9. <\/p>\n\n\n\n<p>Si vous ou un membre de votre famille avez re\u00e7u un diagnostic ARSACS et que vous n&#8217;\u00eates pas inscrit, vous \u00eates invit\u00e9 \u00e0 le faire.   En \u00e9tant inscrit au registre des patients, vous serez inform\u00e9 de tout d\u00e9veloppement majeur et des possibilit\u00e9s d\u2019essais cliniques. De plus, ce registre permet de construire un r\u00e9seau international avec tous les impacts positifs qui en r\u00e9sultent i.e. cr\u00e9er une plus grande notori\u00e9t\u00e9 de la maladie, augmenter les opportunit\u00e9s de financement de la recherche et susciter l\u2019int\u00e9r\u00eat des chercheurs et des compagnies pharmaceutiques. C\u2019est simple et facile.  <a href=\"\/?page_id=3394\">Inscription <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Merci aux personnes qui ont r\u00e9pondu au courriel demandant de confirmer ou mettre \u00e0 jour leurs donn\u00e9es dans le Registre des patients ARSACS. Si vous n&#8217;avez pas encore eu l&#8217;occasion de r\u00e9pondre, veuillez envoyer un courriel \u00e0 administrateur@arsacs.com pour confirmer ou mettre \u00e0 jour vos donn\u00e9es. Ce serait tr\u00e8s appr\u00e9ci\u00e9. Si vous ou un membre [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":10160,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false,"footnotes":""},"categories":[32],"tags":[],"class_list":["post-11927","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-activites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Registre international des patients ARSACS - ARSACS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/arsacs.com\/fr\/registre-international-des-patients-arsacs\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registre international des patients ARSACS - ARSACS\" \/>\n<meta property=\"og:description\" content=\"Merci aux personnes qui ont r\u00e9pondu au courriel demandant de confirmer ou mettre \u00e0 jour leurs donn\u00e9es dans le Registre des patients ARSACS. 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