{"id":21017,"date":"2024-08-18T14:57:40","date_gmt":"2024-08-18T18:57:40","guid":{"rendered":"https:\/\/arsacs.com\/?p=21017"},"modified":"2026-03-16T18:16:31","modified_gmt":"2026-03-16T22:16:31","slug":"s-gobeil-et-b-trainor-lors-du-congres-des-conseillers-en-genetique-2024","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/s-gobeil-and-b-trainor-at-the-genetic-counsellors-conference-2024\/","title":{"rendered":"S. Gobeil et B. Trainor lors du congr\u00e8s 2024 de l'Association canadienne des conseillers en g\u00e9n\u00e9tique"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Sonia Gobeil, cofondatrice de la Fondation Ataxie Charlevoix-Saguenay, et Betsy Trainor, membre du conseil d\u2019administration de la Fondation, participeront \u00e0 une table ronde r\u00e9unissant des patients et des repr\u00e9sentants de groupes de d\u00e9fense des droits lors du congr\u00e8s des conseillers en g\u00e9n\u00e9tique, qui se tiendra \u00e0 Qu\u00e9bec du 25 au 28 septembre 2024.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Les parcours complexes des patients atteints de maladies rares feront l'objet d'une discussion. Autour des th\u00e8mes des d\u00e9fis et de l'espoir, le panel abordera les actions de d\u00e9fense des int\u00e9r\u00eats men\u00e9es en faveur des patients atteints de maladies rares ainsi que les nombreux obstacles li\u00e9s au soutien \u00e0 la recherche sur ces maladies.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/na.eventscloud.com\/website\/71633\/\">Programme CAGC.<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Sonia Gobeil\u00a0(Co-founder of the Ataxia Charlevoix-Saguenay Foundation) and Betsy Trainor (Board member of the Foundation) will be part of the Patient and Advocacy Panel at the Genetic Counsellors Conference in Quebec City, September 25-28, 2024. The complex journeys of rare disease patients will be discussed. With themes of challenges coupled with hope, the panel will [&#8230;]<\/p>\n","protected":false},"author":3,"featured_media":21020,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-21017","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/21017","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=21017"}],"version-history":[{"count":5,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/21017\/revisions"}],"predecessor-version":[{"id":24997,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/21017\/revisions\/24997"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/21020"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=21017"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=21017"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=21017"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}