{"id":22282,"date":"2025-05-05T10:23:36","date_gmt":"2025-05-05T14:23:36","guid":{"rendered":"https:\/\/arsacs.com\/?p=22282"},"modified":"2025-05-05T10:23:40","modified_gmt":"2025-05-05T14:23:40","slug":"la-fondation-au-world-orphan-drug-congress-2025","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/la-fondation-au-world-orphan-drug-congress-2025\/","title":{"rendered":"La Fondation au World Orphan Drug Congress 2025"},"content":{"rendered":"\n<p>Du 22 au 24 avril, la Fondation Ataxie Charlevoix-Saguenay \u00e9tait pr\u00e9sente au World Orphan Disease Congress (WODC), un \u00e9v\u00e9nement majeur rassemblant les leaders mondiaux <a><\/a>du domaine des maladies rares et des m\u00e9dicaments orphelins.<\/p>\n\n\n\n<p>Nous avons eu le privil\u00e8ge de :<\/p>\n\n\n\n<p><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"\u2705\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t33\/1\/16\/2705.png\"> Pr\u00e9senter les avanc\u00e9es sur le d\u00e9veloppement d\u2019une th\u00e9rapie g\u00e9nique pour l\u2019ARSACS, avec Alexandre Par\u00e9 (doctorant \u00e0 McGill).<\/p>\n\n\n\n<p><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"\u2705\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t33\/1\/16\/2705.png\"> Animer une table ronde inspirante sur les enjeux concrets v\u00e9cus par les patients, avec Sonia Gobeil, Betsy Trainor et Dr Jeremy Schmahmann (Harvard Medical School).<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"924\" height=\"924\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2025\/05\/WODC-2025-1-1024x1024.jpg\" alt=\"\" class=\"wp-image-22263\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2025\/05\/WODC-2025-1-980x980.jpg 924w, https:\/\/arsacs.com\/wp-content\/uploads\/2025\/05\/WODC-2025-1-480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 924px) 924px, 100vw\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Du 22 au 24 avril, la Fondation Ataxie Charlevoix-Saguenay \u00e9tait pr\u00e9sente au World Orphan Disease Congress (WODC), un \u00e9v\u00e9nement majeur rassemblant les leaders mondiaux du domaine des maladies rares et des m\u00e9dicaments orphelins. Nous avons eu le privil\u00e8ge de : Pr\u00e9senter les avanc\u00e9es sur le d\u00e9veloppement d\u2019une th\u00e9rapie g\u00e9nique pour l\u2019ARSACS, avec Alexandre Par\u00e9 (doctorant [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false,"footnotes":""},"categories":[28],"tags":[],"class_list":["post-22282","post","type-post","status-publish","format-standard","hentry","category-dernieres-nouvelles"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La Fondation au World Orphan Drug Congress 2025 - ARSACS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/arsacs.com\/fr\/la-fondation-au-world-orphan-drug-congress-2025\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Fondation au World Orphan Drug Congress 2025 - ARSACS\" \/>\n<meta property=\"og:description\" content=\"Du 22 au 24 avril, la Fondation Ataxie Charlevoix-Saguenay \u00e9tait pr\u00e9sente au World Orphan Disease Congress (WODC), un \u00e9v\u00e9nement majeur rassemblant les leaders mondiaux du domaine des maladies rares et des m\u00e9dicaments orphelins. 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