Les personnes atteintes d\u2019ARSACS, ainsi que leurs parents ou tuteurs, sont invit\u00e9es \u00e0 participer \u00e0 une enqu\u00eate en ligne sur la th\u00e9rapie g\u00e9nique.<\/p>\n\n\n\n
\ud83d\udd39 Objectif : recueillir des avis qui contribueront \u00e0 orienter les futurs projets de recherche et la conception des essais cliniques <\/p>","protected":false},"excerpt":{"rendered":" People living with a ARSACS (or parent\/guardian) are invited to take part in an online survey about gene therapy. \ud83d\udd39 Purpose: to gather opinions that will help shape future research projects and clinical trial design\u23f3 Duration: ~30 minutes \u2013 anonymous\ud83d\uddd3\ufe0f Deadline: End of September\ud83d\udc49 Take the survey here: https:\/\/www.surveymonkey.com\/r\/CHZZWLD<\/p>","protected":false},"author":3,"featured_media":22538,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-22537","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/22537","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=22537"}],"version-history":[{"count":3,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/22537\/revisions"}],"predecessor-version":[{"id":25113,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/22537\/revisions\/25113"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/22538"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=22537"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=22537"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=22537"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\u23f3 Dur\u00e9e : environ 30 minutes \u2013 anonyme
\ud83d\uddd3\ufe0f Date limite : fin septembre
\ud83d\udc49 R\u00e9pondez au sondage ici : https:\/\/www.surveymonkey.com\/r\/CHZZWLD<\/a><\/p>\n\n\n\n