{"id":23326,"date":"2026-01-05T14:50:44","date_gmt":"2026-01-05T19:50:44","guid":{"rendered":"https:\/\/arsacs.com\/?p=23326"},"modified":"2026-03-16T18:18:44","modified_gmt":"2026-03-16T22:18:44","slug":"congres-mondial-sur-les-medicaments-orphelins-a-amsterdam-2","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/world-orphan-drug-congress-a-amsterdam\/","title":{"rendered":"Congr\u00e8s mondial sur les m\u00e9dicaments orphelins 2025"},"content":{"rendered":"<p class=\"wp-block-paragraph\">En novembre dernier, l\u2019association Ataxie Charlevoix-Saguenay a \u00e9t\u00e9 brillamment repr\u00e9sent\u00e9e lors de la\u00a0<em>Congr\u00e8s mondial sur les m\u00e9dicaments orphelins<\/em>\u00a0\u00e0 Amsterdam. En tant qu\u2019intervenants, les docteurs Francesca Maltecca, Daniele De Ritis, Bart van de Warrenburg et Sonia Gobeil ont fait part de leur expertise et de leur engagement, contribuant ainsi \u00e0 mettre en avant la recherche et \u00e0 donner de l\u2019espoir aux personnes touch\u00e9es par cette maladie rare. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">La Fondation de l\u2019Ataxie Charlevoix-Saguenay \u00e9tait \u00e9galement pr\u00e9sente avec un stand, offrant ainsi une occasion unique de rencontrer les participants, de nouer des liens et de faire conna\u00eetre sa mission.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large is-style-default\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23322\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-1024x768.jpeg\" alt=\"\" class=\"wp-image-23322\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-980x735.jpeg 980w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23318\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-1024x768.jpeg\" alt=\"\" class=\"wp-image-23318\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-980x735.jpeg 980w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23314\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-1024x768.jpeg\" alt=\"\" class=\"wp-image-23314\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-980x735.jpeg 980w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23310\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-1024x768.jpeg\" alt=\"\" class=\"wp-image-23310\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-980x735.jpeg 980w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"480\" data-id=\"23302\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-rotated.jpg\" alt=\"\" class=\"wp-image-23302\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-rotated.jpg 640w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 640px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"480\" data-id=\"23298\" src=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-rotated.jpg\" alt=\"\" class=\"wp-image-23298\" srcset=\"https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-rotated.jpg 640w, https:\/\/arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 640px, 100vw\" \/><\/figure>\n<\/figure>","protected":false},"excerpt":{"rendered":"<p>En novembre dernier, l\u2019Ataxie Charlevoix-Saguenay a brillamment \u00e9t\u00e9 repr\u00e9sent\u00e9e au\u00a0World Orphan Drug Congress\u00a0\u00e0 Amsterdam. En tant que conf\u00e9renciers, les Drs Francesca Maltecca, Daniele De Ritis, Bart van de Warrenburg et Sonia Gobeil ont partag\u00e9 leur expertise et leur engagement, contribuant \u00e0 faire rayonner la recherche et l\u2019espoir pour les personnes touch\u00e9es par cette maladie rare. [&#8230;]<\/p>\n","protected":false},"author":3,"featured_media":23306,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12,28],"tags":[],"class_list":["post-23326","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-conferences-fr","category-dernieres-nouvelles"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23326","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=23326"}],"version-history":[{"count":4,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23326\/revisions"}],"predecessor-version":[{"id":25166,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23326\/revisions\/25166"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/23306"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=23326"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=23326"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=23326"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}