{"id":24597,"date":"2026-07-15T15:02:07","date_gmt":"2026-07-15T19:02:07","guid":{"rendered":"https:\/\/arsacs.com\/?p=24597"},"modified":"2026-07-15T16:20:35","modified_gmt":"2026-07-15T20:20:35","slug":"une-communaute-du-royaume-uni-se-mobilise-pour-larsacs","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/une-communaute-du-royaume-uni-se-mobilise-pour-larsacs\/","title":{"rendered":"Une communaut\u00e9 du Royaume-Uni se mobilise pour l\u2019ARSACS"},"content":{"rendered":"\n

Nous sommes profond\u00e9ment reconnaissants envers une formidable famille du Royaume-Uni et toute sa communaut\u00e9 pour l’organisation d’une activit\u00e9 de collecte de fonds originale au profit de la recherche sur l’ARSACS.<\/p>\n\n\n\n

\u00c0 la suite du diagnostic d’ARSACS pour leur fils plus t\u00f4t cette ann\u00e9e, ils ont r\u00e9uni leur famille, leurs amis et une \u00e9quipe locale de football pour une journ\u00e9e remplie de plaisir, au cours de laquelle les participants ont construit des radeaux et se sont affront\u00e9s lors de courses amicales. Ils ont \u00e9galement organis\u00e9 une tombola. Gr\u00e2ce \u00e0 leur enthousiasme et \u00e0 la g\u00e9n\u00e9rosit\u00e9 de tous les participants, ils ont amass\u00e9 l’incroyable somme de 1 500 \u00a3 (2773 $CA) au profit de la Fondation de l’Ataxie Charlevoix\u2013Saguenay. La Fondation confirme r\u00e9ception de la somme.<\/p>\n\n\n\n

Chaque initiative de collecte de fonds, petite ou grande, contribue \u00e0 faire progresser la recherche et nous rapproche de meilleurs traitements pour les personnes vivant avec l’ARSACS.<\/p>\n\n\n\n

\u00c0 cette merveilleuse famille du Royaume-Uni, ainsi qu’\u00e0 toutes les personnes qui ont particip\u00e9, fait un don ou les ont encourag\u00e9s, merci. Votre g\u00e9n\u00e9rosit\u00e9, votre d\u00e9termination et votre esprit de solidarit\u00e9 font une r\u00e9elle diff\u00e9rence.<\/p>\n\n\n\n

<\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

Nous sommes profond\u00e9ment reconnaissants envers une formidable famille du Royaume-Uni et toute sa communaut\u00e9 pour l’organisation d’une activit\u00e9 de collecte de fonds originale au profit de la recherche sur l’ARSACS. \u00c0 la suite du diagnostic d’ARSACS pour leur fils plus t\u00f4t cette ann\u00e9e, ils ont r\u00e9uni leur famille, leurs amis et une \u00e9quipe locale de football pour […]<\/p>\n","protected":false},"author":3,"featured_media":24598,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[28,2],"tags":[],"class_list":["post-24597","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dernieres-nouvelles","category-non-classifiee"],"yoast_head":"\nUne communaut\u00e9 du Royaume-Uni se mobilise pour l\u2019ARSACS - ARSACS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/arsacs.com\/fr\/une-communaute-du-royaume-uni-se-mobilise-pour-larsacs\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Une communaut\u00e9 du Royaume-Uni se mobilise pour l\u2019ARSACS - 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