{"id":26551,"date":"2026-07-15T16:04:34","date_gmt":"2026-07-15T20:04:34","guid":{"rendered":"https:\/\/2026.arsacs.com\/?p=26551"},"modified":"2026-07-15T16:09:55","modified_gmt":"2026-07-15T20:09:55","slug":"une-communaute-du-royaume-uni-se-mobilise-pour-larsacs","status":"publish","type":"post","link":"https:\/\/arsacs.com\/fr\/a-united-kingdom-community-comes-together-for-arsacs\/","title":{"rendered":"Une communaut\u00e9 britannique se mobilise pour l'ARSACS"},"content":{"rendered":"

Nous tenons \u00e0 remercier chaleureusement une formidable famille du Royaume-Uni, ainsi que toute sa communaut\u00e9, d\u2019avoir organis\u00e9 une collecte de fonds originale au profit de la recherche sur l\u2019ARSACS.<\/p>\n

Inspir\u00e9s par le diagnostic d\u2019ARSACS re\u00e7u par leur fils au d\u00e9but de l\u2019ann\u00e9e, ils ont r\u00e9uni leur famille, leurs amis et une \u00e9quipe de football locale pour une journ\u00e9e remplie de bonne humeur, consacr\u00e9e \u00e0 la construction et aux courses de radeaux. Ils ont \u00e9galement organis\u00e9 un tirage et, gr\u00e2ce \u00e0 leur enthousiasme et \u00e0 la g\u00e9n\u00e9rosit\u00e9 de tous les participants, ils ont amass\u00e9 l\u2019impressionnante somme de 1 500 \u00a3 (environ 2 773 $ CA) au profit de la Fondation Ataxie Charlevoix-Saguenay. La Fondation confirme avoir re\u00e7u ces fonds.<\/p>\n

Chaque initiative de collecte de fonds, qu\u2019elle soit modeste ou d\u2019envergure, contribue \u00e0 faire avancer la recherche et nous rapproche de traitements plus efficaces pour les personnes atteintes d\u2019ARSACS.<\/p>\n

\u00c0 cette merveilleuse famille du Royaume-Uni \u2014 ainsi qu\u2019\u00e0 toutes les personnes qui ont particip\u00e9, fait un don ou offert leurs encouragements : merci! Votre g\u00e9n\u00e9rosit\u00e9, votre d\u00e9termination et votre esprit communautaire font une r\u00e9elle diff\u00e9rence.<\/p>\n

<\/p>","protected":false},"excerpt":{"rendered":"

We are\u00a0 grateful to one amazing family from the United Kingdom and their community for organizing a creative fundraiser in support of ARSACS research. Inspired by their son’s ARSACS diagnosis earlier this year, they brought together family, friends, and a local football team for a fun-filled day of raft building and racing. They also held […]<\/p>\n","protected":false},"author":3,"featured_media":26553,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-26551","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/26551","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=26551"}],"version-history":[{"count":2,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/26551\/revisions"}],"predecessor-version":[{"id":26555,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/26551\/revisions\/26555"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media\/26553"}],"wp:attachment":[{"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=26551"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=26551"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=26551"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}