The Organizzazione di volontariato (ODV) finances Dr. Roberto Giambruno’s research “Alterations of SACSIN RNA-binding properties are connected to the development of ARSACS” in 2024-2025 .
ODV, a volunteer organization in Italy founded by Susanna Deluca and Dr. Paolo Arrigoni, a member of the Foundation’s Board, is dedicated to the ARSACS cause. Fondazione Telethon is an Italian non-profit organization which finances scientific research projects on rare diseases.