The International Congress for Ataxia Research (ICAR) and the Ataxia Global Initiative (AGI) were held between November 1st – 4th 2022 in Dallas, Texas, USA.

In order to become ready for clinical trials, it is important that outcomes can measure the progression of ataxia and any response to treatment. At the ICAR conference , PROSPAX coordinator Professor Matthis Synofzik gave a presentation on developing outcomes that are meaningful and relevant to people. He presented the results of two PROSPAX surveys which were completed by people with ataxia and HSP.

At the Ataxia Global Initiative (AGI) Conference , Professors Synofzik and Schüle presented the PROSPAX natural history study data from 97 people with SPG7 and 72 people with ARSACS. Highlights of the conferences.