Invitation to ARSACS patients to join in these studies

An international network of ARSACS centers is conducting a multi-center study to collect natural history data and biomarkers, essential data to initiate treatment for ARSACS. We encourage you in joining in these studies and thus supporting the preparation of future...

ARSACS patients worldwide

At first, this degenerative disease was associated with a specific region Charlevoix-Saguenay. More and more, ARSACS is found in many different ethnic groups in the world. Article published in Research Gate Publication.

Dr. Gagnon – New pilot project

Dr. Cynthia Gagnon will undertake a pilot project entitled “Un meilleur contrôle du tronc et des membres inférieurs pour une meilleure mobilité: Évaluation d’un programme de réentraînement pour les personnes atteintes de l’ARSACS”. This pilot project aims...

Dr. Cynthia Gagnon “Researcher of the Year “

Congratulations! Dr. Cynthia Gagnon has received the “Researcher of the Year” national award given by Muscular Dystrophy Canada. Dr. Gagnon is a member of the ARSACS research team. Article published in the Quotidien on Wednesday, November 28, 2018....

ARSACS project at CHEO

“Screening of the Pfizer Chemo-Genetics 3000 compound library for ARSACS” – a new research project to be undertaken shortly at the Children’s Hospital of Eastern Ontario in Ottawa. Stay tuned!

Using Stem Cell Therapies for ARSACS

Dr. Salver Erceg, in Valencia (Spain), explains in a short video how he is using stem cell therapies to investigate in vitro the affected cells in ARSACS patients. This research project is funded by the Foundation.

5th International Symposium on ARSACS on October 31st

The 5th International Symposium on ARSACS will be held in Montreal on October 31st. The agenda will be posted on the website over the next few days. For the first time, the public is invited to attend. The guest speakers at the Symposium will present their research in...