by ARSACS | Apr 15, 2018 | News Archives
A new research has shown that a cheap non-invasive test could be used to diagnose ARSACS according to an article published recently in the Brain journal of neurology. See press release from UCL Faculty of Brain Sciences (London) and the complete research article...
by ARSACS | Mar 7, 2018 | News Archives
“To people with ARSACS, do not to get discouraged, believe in yourself, go ahead even if it takes longer, anything is possible. It is often the mind the first barrier. In addition, I would tell parents to develop their children’autonomy as much as possible with...
by ARSACS | Feb 23, 2018 | News Archives
The “2017 Diner des Producteurs “event gets media coverage in the February issue of the Montreal Centre Ville magazine. Article
by ARSACS | Feb 14, 2018 | News Archives
If you are a researcher interested in ARSACS, the Ataxia of Charlevoix-Saguenay Foundation provides you with a great funding opportunity. Grant application must be received at the latest by May 25, 2018. Application form
by ARSACS | Feb 11, 2018 | News Archives
Do not miss the great Diner des Producteurs, the Foundation’s annual major fundraising event. Save the date : November 1,2018. Details to come.
by ARSACS | Feb 7, 2018 | News Archives
The screening of new molecules at the end of 2017 made it possible to identify other candidate molecules. The list goes on! Already a team from IRIC is investigating whether molecules can get to the brain. The teams of Dr. Brais, Dr. Watts and Dr. McKinney of McGill...
by ARSACS | Jan 31, 2018 | News Archives
Edith Savard devotes herself to her passion: painting. She does it even though she has ARSACS. Discover this positive person and her art. Interview done by Sonia Gobeil in January 2018.
by ARSACS | Jan 17, 2018 | News Archives
The Foundation is very pleased to announce that Mrs. Julie E. Duchesne has joined its Board of Directors. Mrs. Duchesne, actuary, FSA, FCIA, Partner, has some 20 years of experience in the field of benefits consulting and team leadership. She is currently Health...
by ARSACS | Jan 14, 2018 | News Archives
The study has developed an algorithm to facilitate and improve the diagnosis of recessive ataxias, including ARSACS. Dr. Gagnon’s research team and Dr. Brais provided data on the functional abilities of people with ARSACS. This was made possible thanks to the...
by ARSACS | Jan 6, 2018 | News Archives
Congratulations Sarah and thank you to all the donors for their contribution to the cause. Sarah Blackburn’s initiative raised $3,400 for ARSACS by creating awareness among her community for the need to support ARSACS research.
by ARSACS | Jan 3, 2018 | News Archives
The Italian Ministry of Health will fund the project Insight into new therapeutic preclinical strategies in Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay type presented by Gianni Ciofani, Smart Bio-Interfaces, Istituto Italiano di Tecnologia (IIT),...
by ARSACS | Dec 20, 2017 | News Archives
“The high throughput screening platform of the Institute for Research in Immunology and Cancerology (IRIC) is accelerating its screening of molecules using a model derived from fibroblasts of patients with ARSACS. This fall they screened more than 12 000...
by ARSACS | Dec 14, 2017 | News Archives
Summary of progress made by Dr. McKinney & Dr. Watt’s research team on ARSACS, a project funded by the Foundation.
by ARSACS | Dec 9, 2017 | News Archives
“To my colleagues, friends and family, I am asking you to raise money for a cause that is close to my heart, but also to make you aware of this disease, autosomal recessive spastic ataxia Charlevoix-Saguenay, which affects my nephew and my niece. The...
by ARSACS | Dec 7, 2017 | News Archives
Latest update from Dr. Durham and Dr. Benoit, researchers working on ARSACS.
by ARSACS | Dec 3, 2017 | News Archives
report See Dr. Gehring’s progress report “Integrated structural studies of sacsin using electron microscopy and crystallography”. This is one of the projects funded by the Foundation.
by ARSACS | Nov 30, 2017 | News Archives
Joseph-Émile Cashman Kadri, research student working with Dr. Hébert on an ARSACS project, presented the results of his study at the students’ conference of the 2017 summer fellows of the Faculty of Medicine of Laval University. According to Dr. Hébert,...
by ARSACS | Nov 27, 2017 | News Archives
report See Dr. Hébert’s report ( available in French only). “Caractérisation des déficiences musculaires associées aux difficultés à la marche et aux transferts chez des patients atteints d’ARSACS: de la cellule à la fonction” is one of the...
by ARSACS | Nov 18, 2017 | News Archives
$ 905 raised for ARSACS research thanks to the zumba dancers. The zumbathon, organized by Catherine Morel, Elizabeth St-Louis, Charlotte Boisvert and Shanlie Théroux, took place on October 26, 2017 at UQTR. Thank you to all the dancers for their participation and to...
by ARSACS | Nov 16, 2017 | News Archives
“Nothing stops François and Laurent, not even the Ataxia of Charlevoix-Saguenay. The two young brothers excel in sledge hockey which allows them to practice their favorite sport” Interview with Frédéric Lacroix – Couture, L’ express Mont-Royal,...
