Upcoming Conferences & Events
Milan 2026: Scientific Conference on ARSACS
The Foundation is pleased to participate to the scientific conference entitled “Focusing on Rare Conditions: Advances, Challenges and New Horizons in ARSACS,” which will take place in Milan on September 24, 2026. Among the organisers of this unique event is ARSACS...
8th edition of the ARSACS Symposium
We are pleased to announce the 8th edition of the ARSACS Symposium, to be held on November 9, 2026, as an official satellite meeting of the International Congress for Ataxia Research (ICAR) in Atlanta. This in-person event will bring together leading researchers and...
Past Conferences and Events
Fireside Chat at WODC Amsterdam – October 29, 2025 at 2:40 PM
ARSACS : Finding Solutions for Rare Disease Patients – Sonia Gobeil and Maxine Monk
Conference at WODC Amsterdam – October 28, 2025 at 4:50 PM
A gene therapy approach for ARSACS: insights from preclinical models – Drs. Francesca Maltecca and Daniel Di Ritis
World Orphan Drug Congress in Amsterdam, October 27-29, 2025
World OrphanDrug Congress Europe 2025. THE WORLD'S LEADING ORPHAN DRUG AND RARE DISEASE EVENT! 27–29 October 2025 RAI Congress Centre, Amsterdam JOIN US! 2,000+ Attendees 250+ Speakers 130+ Exhibitors
Webinar LIVE – October 2, 2025 at 12:00 PM
In collaboration with the Ataxia of Charlevoix-Saguenay Foundation, you are cordially invited to join the webinar presented by Drs. Benoit Gentil and Simon Girard. They will discuss the identification of mutations around the world, how the ataxia of...
Foundation-Funded Project Featured at ASGCT – May 2025
A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. The presentation video titled “Ataxia of...
Sonia Gobeil Interview with CheckRare – April 2025
Last April, Sonia Gobeil was interviewed by CheckRare during the World Orphan Drug Congress (WODC). This is a valuable opportunity to raise awareness for ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) and to highlight the importance of ongoing...
Fireside Chat Session ‘ARSACS (Ataxia Charlevoix-Saguenay): Finding solutions for rare disease patients’ – Boston, April 23, 2025
As part of the World Orphan Drug Congress, this session was led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.
Conference ‘Development of a gene therapy for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay; challenges and success’ – Boston, April 22, 2025
As part of the World Orphan Drug Congress, this conference was presented by Alexandre Paré (McGill PhD student).
World Orphan Drug Congress in Boston, April 22-24, 2025
This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the...