Upcoming Conferences & Events
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Past Conferences and Events
World Orphan Drug Congress in Boston, April 22-24, 2025
This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the...
Webinar ‘Research and Treatment Development for ARSACS’ – February 28, 2025
This webinar, hosted by Dr. Justin Wolter, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
Webinar ‘All about ARSACS’Webinar ‘Présentation d’un projet de recherche sur l’ARSACS : un modèle collaboratif’
February 14th 2025 - This webinar was presented by Sonia Gobeil (co-founder) and Dr. Benoit Gentil as part of the month of 'Zébrier 2025', organized by the Regroupement québécois des maladies orphelines. View here
Webinar ‘All about ARSACS’
February 13, 2025 - This webinar, hosted by Dr. Nicolas Dupré and Dr. Élise Duchesne, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
The 6th International Symposium on ARSACS – A success!
More than 200 participants from different backgrounds (academic, pharmaceutical and people with ARSACS) participated in the Symposium. An international network of ARSACS researchers who shared their research progress in a climate of collaboration and exchange of...
Canadian Society of Molecular Biosciences conference
A virtual conference to be held on June 14-17, 2021. This scientific conference has relevance to ARSACS. The theme is protein homeostasis, or proteostasis, which include the systems for production and folding of proteins, and the quality control repair and degradation...
ARSACS research results presented at the 31st International Symposium on ALS/MND
Dr. Gentil and Dr. Durham presented the results of their team's ARSACS research at the 31st International Symposium on ALS/MND. The research, funded by the Foundation, was the work of Afrooz Dabbaghizadeh and Alexandre Paré.31st International Symposium on ALS/MND-...
Info sheet on muscles co-contraction in ARSACS patients
As part of the Rare Diseases Day (February 25) organized by GRIMM, Dr. Olivier Audet will present his research findings on muscle co-contractions in ARSACS patients. Infographie (in French only).
Video of Dr. Hébert’s conference on abnormal muscles co-contraction in ARSACS patients
In case you missed it, this is a opportunity to view the virtual conference held on January 21 by Dr. Luc Hébert and Olivier Audet on the abnormal muscles co-contraction in ARSACS patients and possible avenues for interventions. Virtual conference. ( Text of...