Last November, Charlevoix–Saguenay Ataxia Foundation was brilliantly represented at the World Orphan Drug Congress in Amsterdam. As speakers, Drs. Francesca Maltecca, Daniele De Ritis, Bart van de Warrentburg, and Sonia Gobeil shared their expertise and unwavering commitment, helping to spotlight ongoing research and bring hope to individuals and families affected by this rare disease.

The Charlevoix–Saguenay Ataxia Foundation was also present with an exhibition booth, offering a valuable opportunity to meet participants, foster meaningful connections, and raise awareness of its mission on the international stage.