by ARSACS | Dec 17, 2023 | Latest News
During this Holiday Season, here is an inspiring video of friendship, generosity and community support for the ARSACS cause. Last Fall, Gabriel and Olivier , two childhood friends, took up the Défi Charlevoix- Saguenay and raised $15, 000 for ARSACS research....
by ARSACS | Dec 12, 2023 | Latest News
The Ataxia Charlevoix-Saguenay Foundation is pleased to announce the newest member of its Board of Directors. As vice-president at Neuron23, Dr. Luc Desnoyers is leading the biomarker and diagnostics efforts to move programs from the late-stage research to clinical...
by ARSACS | Dec 10, 2023 | Latest News
Major highlights of the ARSACS Symposium held in October. Thank you to Dr Justin Wolter for his dedication in providing this summary.
by ARSACS | Dec 3, 2023 | Latest News
The funds raised will play a crucial role in funding research projects and paving the way for a clinical trial. Therefore, bringing us one step closer to providing hope and relief to those affected by ARSACS. We want to express our deepest gratitude to our donors,...
by ARSACS | Nov 27, 2023 | Latest News
“Molecular rewiring in cellular models of ARSACS ” research progress report from Dr. Paul Chapple, Barts and London Queen Mary’s School of Medicine, London, UK. Report for the first year of the project financed by the Foundation.
by ARSACS | Nov 23, 2023 | Latest News
This Giving Tuesday, we are rallying support for ARSACS research—a cause that holds immense significance for those affected by this rare genetic condition. Your contribution, no matter the amount, can play a crucial role in funding research that brings us closer to a...
by ARSACS | Nov 15, 2023 | Latest News
As part of the TREAT ARCA project, a webinar was held in September 2023 to demystify the world of gene therapy!. It was designed to break down the complexities of gene therapy into easy-to-follow concepts. Discover its potential to shape the future of medicine. Gene...
by ARSACS | Nov 9, 2023 | Latest News
200 registrants at the Symposium, a scientific event on ARSACS research. The discussions were dynamic and highlighted the latest advancements in research. The symposium definitely fostered collaborative thinking. The active participation, insightful contributions, and...
by ARSACS | Nov 8, 2023 | Latest News
Deadline: November 23, 2023 to submit your project. The ARSACS Organizzatione Di Volontariato (ARSACS ODV) in collaboration with Telethon is financing “seed” research projects for a 12-month period with a maximum budget of €50,000. More...
by ARSACS | Oct 28, 2023 | Latest News
“I am pleased to have the opportunity to ensure that in every major decision the organization makes, the needs of patients and care givers will be considered. As the parent of children with a rare disease and co-founder and president of a foundation dedicated to...
by ARSACS | Oct 28, 2023 | Latest News
The ARSACS Organizzatione Di Volontariato (ARSACS ODV) in collaboration with Telethon is pleased to announce an opportunity for researchers to work on ARSACS . The initiative aims to finance “seed” research projects for a 12-month period with a maximum...
by ARSACS | Oct 11, 2023 | Latest News
Join us on October 19 and 20 at the 7th International Symposium on ARSACS. A great opportunity to learn about the latest advancements in ARSACS research. It will be an in-person and virtual event. It is free and open to all. Registration
by ARSACS | Oct 9, 2023 | Latest News
The Ataxia Charlevoix Saguenay Foundation is pleased to announce the funding ofsix innovative research projects in 2023-2024. Press Release.
by ARSACS | Sep 27, 2023 | Latest News
Gabriel Paquet- Desbiens and Olivier Houde , two childhood friends, accomplished their Défi Charlevoix- Saguenay to help finance research for the Charlevoix- Saguenay Ataxia, from which Gabriel is affected. They covered 143Km by cycling or jogging last weekend. The...
by ARSACS | Sep 25, 2023 | Latest News
A great opportunity to learn about the latest advancements in ARSACS research and to meet the ARSACS research team. You can attend this free scientific symposium either in-person or on-line. New this year, a panel discussion with ARSACS patients, carers and partners....
by ARSACS | Aug 27, 2023 | Latest News
“Preclinical studies in the Sacs KO mouse model of ARSACS”- research project under the leadership of Dr Stefan Strack from University of Iowa, USA
by ARSACS | Jun 22, 2023 | Latest News
Le Diner des Producteurs – Reservation form
by ARSACS | Jun 3, 2023 | Latest News
As part of a program at improving worker health, Rio Tinto et 3 business companies from Saguenay donate $2,887.50 for ARSACS research. Thank you to the donors and the organizers for their generosity. Photo from L to R, Mr. Etienne Fortin (Rio Tinto), Georges Perron...
by ARSACS | Jun 3, 2023 | Latest News
“A mitochondrial-targeted antioxidant (MitoQ) improves motor coordination and reduces Purkinje cell death in a mouse model of ARSACS”– ARSACS research by Drs. Watt and McKinney from McGill published in the Neurobiology of Disease journal in May, 2023. Research funded...
by ARSACS | May 15, 2023 | Latest News
ARSACS research by Dr. Maltecca and her team published in the JCI insights in May, 2023. “Restoring calcium homeostasis in Purkinje cells arrests neurodegeneration and neuroinflammation in the ARSACS mouse model”
