Sonia GobeilĀ (Co-founder of the Ataxia Charlevoix-Saguenay Foundation) and Betsy Trainor (Board member of the Foundation) will be part of the Patient and Advocacy Panel at the Genetic Counsellors Conference in Quebec City, September 25-28, 2024.

The complex journeys of rare disease patients will be discussed. With themes of challenges coupled with hope, the panel will discuss advocacy efforts supporting rare disease patients and the many obstacles associated with supporting research for rare diseases.

CAGC Program.