From April 22 to 24, the Ataxia Charlevoix-Saguenay Foundation was present at the World Orphan Disease Congress (WODC), a major event gathering global leaders in the field of rare diseases and orphan drugs.
We had the privilege of:
Presenting the progress in the development of a gene therapy for ARSACS, with Alexandre Paré (PhD candidate at McGill).
Leading an inspiring roundtable on the real-life challenges faced by patients, with Sonia Gobeil, Betsy Trainor and Dr. Jeremy Schmahmann (Harvard Medical School).
