Fireside Chat Session ‘ARSACS (Ataxia Charlevoix-Saguenay): Finding solutions for rare disease patients’ – Boston, April 23, 2025 by ARSACS | May 12, 2025 | News Archives, Past Conferences As part of the World Orphan Drug Congress, this session was led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.