Ataxia Charlevoix-Saguenay Foundation
In 2006, the Foundation was created and funded the first research to be undertaken since the identification of the Ataxia gene in 2000. It was crucial to begin research in order to discover a treatment for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).
Since its creation, the Foundation has funded several research projects related to this neurological disorder. The Foundation is a charitable organization and is supported entirely by private donations and volunteers who support the cause.
Research Objectives
The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Every year the Foundation financed several research projects in Canada and abroad. The efforts of the Foundation are concentrated currently in three main research areas:
Financing of several promising research projects with reearchers that are experts in this field.
Forming partnerships with other organizations and pharmaceutical companies to further the understanding of this disease and conduct independent research.
Conducting clinical trials
Scientific Advisory Board
All applications for research grants are evaluated by the Scientific Advisory Board of the Ataxia of Charlevoix-Saguenay Foundation according to specific criteria.
Research Grants
To further encourage and accelerate the development of a treatment for ARSACS, the Ataxia Charlevoix-Saguenay Foundation provides grants and opportunities to researchers.
This year, the call for proposals of the Ataxia of Charlevoix-Saguenay Foundation is jointly supported by the “Richardson Research Fund” to fund ARSACS research projects.
As part of this funding offer, the Ataxia Charlevoix-Saguenay Foundation in collaboration with the “Richardson Research Fund” offers up to a maximum of $100,000 CAD per project and up to $25,000 CAD per project to support start-up initiatives (Seed Grant).
Both types of grants are awarded for a 12-month period, with the possibility of renewal. For more information and to apply : ARSACS Call for Proposals and Application Form.
ARSACS Research Projects
2026-2027
The Foundation gratefully acknowledges the generous support of the Richardson Trust Fund and Action for ARSACS Foundation USA (AFA) in helping fund the 2026–2027 ARSACS research projects.
Partnership with CIHR Institue of Genetics
The Ataxia of Charlevoix-Saguenay Foundation is pleased to announce a partnership with the CIHR Institute of Genetics and its' participation to the 2014 "Development of Innovative Therapeutic Approaches for Rare Diseases" Joint Transnational Call. Following is the...
Research 2012
Summary of the ARSACS Team Meeting All members of the ARSACS research team participated in a meeting held on November 29th, 2012 in Montreal. See Summary to find out the key points of the meeting. A long trip for the knock-in mice On November 6, 2012, 8 sacsin...
Recherche 2012
Compte rendu de l’équipe de recherche Tous les membres de l’équipe de recherche sur l’ARSACS ont participé à une rencontre qui s’est tenue le 29 novembre 2012 à Montréal. Pour un résumé des points saillants, voir Compte rendu. Un long voyage pour les souris...
La Fondation finance le projet du Dr Boycott
Le 24 septembre 2012- Dans le cadre du « Concours 2012 : Projets de recherche appliquée à grande échelle » lancé par Génome Canada, la Fondation de l’Ataxie Charlevoix-Saguenay offre un appui financier au projet du Dr Kym Boycott de l’Université d’Ottawa lequel est en...
Large -scale Applied Research 2012 Competition
As part of the " Large -scale Applied Research 2012 Competition" launched by Genome Canada, the Foundation of Ataxia Charlevoix-Saguenay will provide financial support to the project of Dr. Kym Boycott of the University of Ottawa which is competing for grant funding...
Délégation suisse à Montréal en mai 2012
Dans le cadre du partenariat entre la Fondation de l'Ataxie Charlevoix-Saguenay, le projet Brain@mcgill et le Centre Neuroscience de Zurich, une délégation suisse était à l'Université McGill les 22 et 23 mai. La délégation était composée entre autre de M. Mauro...
Swiss delegation in Montreal in May 2012
As part of the partnership between the Ataxia Charlevoix-Saguenay Foundation, the Brain@mcgill project and the Zurich Neuroscience Center, Mr. Mauro Dell'Ambrogio, Swiss Secretary of State for Education and Research, Mr Mauro Moruzzi, Head of International Affairs for...
Research 2011
The results of the ARSACS research project have been presented at the American Society for Cell Biology annual meeting held on Dec 6 in Denver, Colorado and have been posted on the following scientific websites:...
Recherche 2011
Les résultats de la recherche ARSACS sont maintenant publics. Ils ont été présentés à la réunion annuelle de l’American Society for Cell Biology le 6 décembre à Denver, Colorado et ils sont publiés sur les sites scientifiques suivants:...
Symposium sur l’ARSACS- Un succès!
En marge du congrès organisé par l'International Federation of Human Genetcis Societies lequel a eu lieu le 11 octobre 2011 à Montréal, s'est tenu le 17 octobre un symposium international sur l'ARSACS organisé par Dr. Brais. 35 chercheurs ont assisté à l'événement....
International Symposium on ARSACS in 2011
As part of the congress organised by the International Federation of Human Genetcis Societies held on October 11 2011 in Montréal, there was an international symposium on ARSACS organised by Dr. Brais on October 17. In fact, 35 researchers attended the International...
Rencontre avec le Centre Neuroscience de Zurich
Dans le cadre d'un partenariat avec l' Université McGill, une rencontre importante s'est tenue le 19 septembre 2011 à Montréal avec les représentants du Centre Neuroscience de Zurich. Cette première étape visait entre autre à stimuler l'intérêt d'autres chercheurs et...
Meeting with Swiss Research Group
As part of the partnership with McGill University, an important meeting was held on September 19 in Montreal with representatives of the Zurich Neuroscience Centre. This first meeting was to promote the ARSACS project to researchers and to identify potential...
Études des souris transgéniques
Souris KO • Phénotyper les souris SACS KO en utilisant les instruments suivants: Rotarod, Micro CT, Grip- strenght, Open-field test. •Poursuivre l'analyse histologique chez les SACS KO : DRG, muscles, rétine, nerfs sciatique et optique • Tester différentes...
Studies of transgenic mice
KO mice • Phenotype the SACS KO mice using the following instruments: Rotarod, Micro CT, Grip- strenght, Open-field test. • Continue the histological analysis of the SACS KO : DRG, muscles, retina, sciatic and optic nerves. • Test different neuronal modifications. •...
objectifs de recherche
Les objectifs de recherche ont été fixés pour 2010-2011 pour différentes sphères d'activitiés: • Études structurelles • Modèles cellulaires et partenaires protéiques • Études des souris transgéniques • Modèles organotypiques d'hyppocampe et de cervelet • Publications/...
Scientific Research Objectives
Scientific Research Objectives for 2010/11 The objectives for the research project have been established for 2010-2011 for the following categories: • Structural studies • Cellular models and protein partners • Studies of transgenic mice • Organotypic models of...
Recherche en 2009
Au cours des prochains mois, l'équipe de chercheurs concentrera ses efforts à : • Compléter l'étude des cerveaux et neurones de l'hippocampe. • Compléter les études histologiques de cerveaux de souris afin d'établir les populations de neurones où se trouve la sacsin,...
Research in 2009
Over the next few months, the research team will focus its efforts on : • Completing the study on the brain and neurons of the hippocampus. Complete the current studies on the histology of the brain of mice to identify where the sacsin is in the neurons population and...
Article du Dr Erceg sur les cellules souches pluripotentes
Le chercheur Dr Salven Erceg (Espagne) a publié un article sur les cellules souches pluripotentes induites par l'homme. Ceci a été rendu possible grâce au projet de recherche finance par la Fondation ARSACS. En savoir...